Tag Archives: ALS

Ice Bucket Challenge: Raising Money and Awareness for ALS

Perhaps you’ve seen it online, on your Facebook feed, or across popular morning shows in recent days – the ice bucket challenge! Individuals are taking to media, volunteering to have buckets of ice water poured over their heads to raise money and awareness for ALS, also known as Lou Gehrig’s Disease.

What is ALS?
ALS stands for Amyotrophic Lateral Sclerosis (ALS), but is more commonly referred to as “Lou Gehrig’s Disease.” The disease is characterized by the ALS Association as neurodegenerative disease that affects nerve cells in the brain and the spinal cord. Individuals living with ALS suffer from degenerative loss of motor skills, muscle loss, and can even lead to total paralysis.

Some early symptoms can include increasing muscle weakness, especially in the arms and legs, and loss of speech, difficulty swallowing or breathing. Learn more about the disease at www.alsa.org.

While there is currently no cure for ALS, the disease is 100% fatal. There is currently one medication and others in trial period that offer hope to those living with the disease and help slow down symptoms.

Who started the Ice Bucket Challenge?
The ice bucket challenge campaign was started by Pat Quinn, who became an ALS ambassador after being diagnosed with the disease himself. He got the idea from other similar “challenges” that people were doing and then posting online and recognized the power social media could have in spreading awareness and raising money for those living with the disease every day.

Since he kicked off the campaign, celebrities like Justin Timberlake, the cast of Good Morning America, Michael Strahan, Josh Ramsay, the Patriots and others have been challenging each other to “take the plunge” and spread the news.

How is the challenge impacting the Disability community?
Thanks to the ice bucket challenge, the ALS Association has reportedly received $4 million in donations between July 29 and August 12 and have welcomed more than 70,000 new donors! Contributions will go towards finding a cure for ALS while funding the highest quality of care for people living with the disease.

The ALS community is hoping the increased awareness and funds could lead to a new breakthrough in fighting for the cause. Even those who are not able to donate have helped raise awareness which could potentially help groups like the ALS Association expedite the extensive collaboration required between individuals, medical institutions, and testing labs which could help lead to a potential cure for the disease and help improve the quality of life for those living with it.

11th Annual Ride For Hope

11th Annual Ride For Hope

 

11th Annual Ride For HopeIn Loving Memory of John Frontes Sr.

All proceeds to benefit ALS: Lou Gehrig’s Disease

When?
September 21, 2014
Registration begins at 9:00am
Ride Starts at 11:00am

Fee per person: $25.00

Where?
The ride begins and ends at The Mishnock Barn
200 Mishnock Road West Greenwhich, RI 02817

Post Party Includes:
Lunch ~ Live Music *The Allbros Band and The Big River Band*
Raffles ~ Pig Roast ~ Rodeo

Ticket Information
Call Bob Fontes at (401) 822-4917
(401) 263-4626

Website
http://alsrideforhope.weebly.com/

ALS Awareness Month

ALS Awareness Month 2014
ALS (amyotrophic lateral sclerosis) is a devastating progressive neurodegenerative disease which destroys the ability to walk, speak, eat and breathe. ALS was first recognized as a disease in 1869, by Jean-Martin Charcot, a French Neurologist. However, ALS is sometimes referred as Lou Gehrig’s disease; named after Lou Gehrig, a famous baseball first basemen, whose career was stopped in 1939 when he developed ALS at the age of 36. At that time, ALS was given widespread public attention due to the high profile of this baseball player.

The aim of ALS awareness month is to raise awareness about ALS, gather support for those affected by this condition and to encourage funding and research into a treatment or cure.

Raising Awareness About The Effects Of ALS
ALS affects the body by attacking motor neurons (nerve cells) of the brain and spinal cord. Motor neurons are cells which process and transmit signals which help to control muscles. Destruction of motor neuron cells leads to symptoms related to loss of muscle control. Typical symptoms of ALS include inability to walk, speak, eat and even breathe.

As ALS is a progressive disease, more motor neurons are destroyed overtime worsening the symptoms. Difficulty breathing and swallowing are later symptoms; paralysis can also develop. After the onset of this disease, fatality usually occurs within 2-5 years.

Healthy People In Their Prime Can Also Get ALS
ALS typically affects people over the age of 40, including those who were previously enjoyed excellent health in the prime of their lives. Whilst ALS affects a minority of the population (in the US about 30,000 people have this condition), ALS is indiscriminate in the types of people who will be affected by it. Famous people who had ALS include NBA player George Yardley, Senator Jacob Javits and former vice president of the US, Henry Wallace.

ALS can be devastating to both the person and to their friends and family. At present there is no known treatment or cure for ALS. If a cure or greater understanding of ALS is achieved, then it is likely that this will benefit research into related conditions like Parkinson’s, Huntington’s and Alzheimer’s disease. There could be a similar underlying neurodegenerative condition in each of them.

The Event ‘Walk To Defeat ALS’ Helps Raise Awareness & Support For People With ALS

Supporting ALS Awareness Month
Several organizations which represent people with neurodegenerative diseases back ALS Awareness Month to support those with this condition and to raise funds for research into a cure. These include the Muscular Dystrophy Association and the ALS Association who host seminars and other activities throughout the United States, during May.

To coincide with this awareness month, the ALS Association have in more recent years run a campaign, ‘ALS Across America’. Established in 2008, ‘ALS Across America’ aims to raise awareness about ALS by sharing with the media and public the experience people throughout the United States have with ALS. When we become aware of the plight of people with this serious disease, we are more likely to support them and the related organizations which work to find a cure.

A person can get involved in ALS awareness month by:

  • donating money to help fight this disease
  • becoming inspired after reading and listening to stories about people with this condition
  • advocating for people with ALS
  • staying connected with ALS News and Updates
  • getting involved with various events to help raise awareness
  • participating in ‘Walk to Defeat ALS’

National Disability Employment Awareness Timeline

National Disability Employment Awareness Month TimelineThis year’s theme is “Because We are EQUAL to the Task.” This theme mirrors the reality that people with disabilities have the talent, education, desire, training, and experience to be successful in the workplace.

Presidential Proclamation – NDEAM 2013

National Disability Employment Awareness Month, 2013
By the President Of The United States Of America
A Proclamation

Our Nation has always drawn its strength from the differences of our people, from a vast range of thought, experience, and ability.  Every day, Americans with disabilities enrich our communities and businesses.  They are leaders, entrepreneurs, and innovators, each with unique talents to contribute and points of view to express.  During National Disability Employment Awareness Month, we nurture our culture of diversity and renew our commitment to building an American workforce that offers inclusion and opportunity for all.

Since the passage of the Americans with Disabilities Act, we have made great progress in removing barriers for hardworking Americans.  Yet today, only 20 percent of Americans with disabilities, including veterans who became disabled while serving our country, participate in our labor force.  We need their talent, dedication, and creativity, which is why my Administration proudly supports increased employment opportunities for people with disabilities.  To that end, I remain dedicated to implementing Executive Order 13548, which called on Federal agencies to increase recruitment, hiring, and retention of people with disabilities.  As a result of our efforts, the Federal Government is hiring people with disabilities at a higher rate than at any point in over three decades.  Most recently, we updated the rules to make sure Federal contractors and subcontractors are doing more to recruit, hire, and promote qualified individuals with disabilities, including disabled veterans.  And thanks to the Affordable Care Act, States are taking advantage of new options to support and expand home and community-based services.

In the years to come, I will remain committed to ensuring the Federal Government leads by example.  This year, as we mark the 40th anniversary of the Rehabilitation Act, I will continue to marshal the full resources of my Administration toward effective and comprehensive implementation.

If we swing wide the doors of opportunity for our family, friends, and neighbors with disabilities, all of us will enjoy the benefits of their professional contributions.  This month, let us uphold the ideals of equal access, equal opportunity, and a level playing field for all Americans.

NOW, THEREFORE, I, BARACK OBAMA, President of the United States of America, by virtue of the authority vested in me by the Constitution and the laws of the United States, do hereby proclaim October 2013 as National Disability Employment Awareness Month.  I urge all Americans to embrace the talents and skills that individuals with disabilities bring to our workplaces and communities and to promote the right to equal employment opportunity for all people.

IN WITNESS WHEREOF, I have hereunto set my hand this thirtieth day of September, in the year of our Lord two thousand thirteen, and of the Independence of the United States of America the two hundred and thirty-eighth.

BARACK OBAMA