Tag Archives: ability

Keep Calm It’s Only An Extra Chromosome

keep calm its only extra chromosome - Down Syndrome Awareness Month

Despite the incredible number of medical advances which have enriched and extended the lives of people with Down syndrome, Trisomy 21 continues to be extremely misunderstood. Many people look at Down syndrome through the lens of outdated stereotypes and misconceptions.

Down Syndrome Awareness Month, celebrated each October, is one way to change that. The goal of Down Syndrome Awareness Month is, of course, to spread awareness, to educate about Down syndrome, and to celebrate people who have Down syndrome, and their abilities and accomplishments.

Facts about Down syndrome:

What is Down syndrome?
Trisomy 21, or Down syndrome, is a genetic disorder which is caused by a full or partial third copy of the 21^st chromosome. There are three types of Down syndrome. Trisomy 21, or nondisjunction, is the most common kind, seen in 95% of Down syndrome cases. The extra chromosome is present in every cell in the body. Translocation Down syndrome occurs in about 4% of Down syndrome cases and is caused by a partial copy of the 21^st chromosome breaking off and attaching to another chromosome (usually the 14^th chromosome). Finally, Mosaic Down syndrome is the rarest case, seen in about 1% of Down syndrome cases. Mosaic Down syndrome happens when the nondisjunction of an extra chromosome is present in some, but not all, of the body’s cells. Some cells will have 47 chromosomes, while the rest will have the typical 46 chromosomes.

Is Down syndrome rare?
No, Down syndrome is not rare. It is the most commonly occurring genetic disorder or birth defect. One out of every 691 babies born in the United States will have Down syndrome, and there are over 400,000 people who have Down syndrome living in the United States. Down syndrome occurs in all races, and while women are at a greater risk of conceiving a child with Down syndrome as they get older, the majority of babies with Down syndrome are born to younger mothers.

What are the effects of having Down syndrome?
People with Down syndrome usually have hypotonia, or low muscle tone, and developmental delays. Early intervention programs and therapies are able to help children with Down syndrome reach the same milestones as typical children, albeit at a slightly longer pace. The rate at which the person with Down syndrome reaches these milestones, as well as the developmental delays he or she has, will be highly individual. There usually are cognitive delays as well, ranging from mild to moderate. It is important to remember, though, that each person with Down syndrome is different, just like typical people. People with Down syndrome are also at increased risk for various medical conditions, such as heart defects, hearing problems, thyroid conditions, childhood leukemia, and Alzheimer’s. However, medical advances have made most of these issues highly treatable, to the point where people with Down syndrome have life expectancies similar to those of people with typical chromosomes.

What are the physical characteristics of Down syndrome?
There are common markers for Down syndrome, which include almond-shaped eyes, a single crease in the palm, flat facial features, small ears, and extra space between the big toe and second toe. However, each person with Down syndrome is an individual, so some people may exhibit many of these characteristics, while others will not have any.

Can people with Down syndrome lead normal, fulfilling lives?
People with Down syndrome often do work and make contributions to society. They also get married, as well as have friendships and other meaningful relationships. Unfortunately, most men with Down syndrome cannot have children, or have a lower fertility rate than typical men. About 50% of women with Down syndrome are able to have children. Thirty-five to fifty percent of children born to a mother with Down syndrome will also have Down syndrome, or other developmental delays. Most importantly, people with Down syndrome do lead happy, fulfilling lives. Studies have consistently shown that people with Down syndrome overwhelmingly report being happy with themselves, their lives, and how they look.

Are people with Down syndrome always happy?
No. People often refer to people with Down syndrome as always happy, or as constantly full of love and joy, but this does a disservice to people with Down syndrome. They experience the full range of emotions, just like everyone else. Reducing them to one emotion or one feeling reduces them to less of a person. They feel happiness, along with sadness, anger, frustration, and countless other feelings, and they deserve to have those feelings acknowledged.

National Disability Employment Awareness Month Facts & Figures

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Held each October, Disability Employment Awareness Month is a national campaign that raises awareness about disability employment issues. The opportunity to earn a living and be self-supporting is a broadly held goal by Americans. Work is a foundation of stability for individuals and can give one’s life meaning and purpose. Unfortunately, the rate and level of employment for people with disabilities is staggeringly low. Labor force participation is 22% for people with disabilities as compared to 69% for people without disabilities.

Boston Abilities Expo– Event for People with Abilities–Makes Boston Debut September 20-22

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Abilities Expo–the Nation’s Leading Event for People with Abilities–Boston September 20-22

BOSTON, August 22, 2013 /VMiNewswire/ — VMi New England’s community of people with disabilities—which also includes families, caregivers, seniors, wounded veterans and healthcare professionals—welcomes the much-anticipated return of the Abilities Expo Boston on September 20-22, 2013 at The Boston Convention & Exhibition Center. Admission is free.

Abilities Expo has enjoyed tremendous success in bringing life-enhancing products and services, education, resources and fun to people with disabilities in Los Angeles, New York, Chicago, Houston, Atlanta and San Jose each year.

The Abilities Expo Boston will feature an impressive line-up of exhibits, celebrities, workshops, events and activities to appeal to people of all ages with the full spectrum of disabilities—including physical, learning, developmental and sensory disabilities.

“We are thrilled for the opportunity to bring Abilities Expo to Boston,” said David Korse, president and CEO of Abilities Expo. “We can’t wait help people explore the possibilities and open their eyes to all the things they can do.”

The Latest Products and Services
Attendees will experience cutting-edge products and services for people with a wide range of disabilities. They will find mobility products, devices for people with developmental disabilities, medical equipment, home accessories, essential services, low-cost daily living aids, products for people with sensory impairments and much more.

Relevant Workshops
A series of compelling workshops which address pressing disability issues will be offered free-of-charge to all attendees. Sessions will focus on travel, emergency preparedness, therapeutic recreation, thriving as a parent of a unique child, home accessibility, finding the correct mobility device and that is just for starters.

Sports, Instruction, Dancing and More!
Abilities Expo does not merely inform, it engages and it entertains. Attendees of all levels of ability will learn the latest hip hop dance moves and play a host of adaptive sports like rowing, power soccer and more. And the kids will love the face painting!

Meet the Animals
Animals have become an intrinsic part of the community of people with disabilities. Some are essential to the healing process, while others help their human partners become more independent. Expo-goers will enjoy assistance dog demos, and learn how service monkeys can help people with special needs.

Celebrity Encounters
Meet Chelsie Hill, co-founder of the dance sensation Team Hotwheelz and one of the dynamic divas of Push Girls, Sundance Channel’s award-winning, boundary-breaking docu-series that traces the lives of four women in Hollywood who happen to be in wheelchairs.

Jennifer French, silver medalist for Sailing at the 2012 Paralympian Games and the 2013 Rolex Yachtswoman of the Year, will conduct a workshop and book signing for her new autobiography, On My Feet Again.

Come to VMi New England’s Mobility Center were every day is a Ability Expo

2010 Chrysler Town and Country · For Sale

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We just took in a 2010 Chrysler Town and Country LMT as a trade-in for a converted van.

Additional Information

• 10,421 miles
• 4.0L V6 SFI SOHC 24V
• Fuel Type: Gasoline
• MPG City/Hwy: 17 city/24 hwy

Pictures

2010 Chrysler T&C No Conversion 2A4RR8DX4AR421854 interior rear view

Trade-Ins
We accept both converted mobility vehicles and non-modified vehicles as long as the vehicle is in very good condition. It is also preferred that the vehicle is under 10 years old with odometers at 100,000 miles or less.

Adapting Motor Vehicles for People with disAbilities

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Introduction

A Proven Process for Gaining Freedom on the Road

The introduction of new technology continues to broaden opportunities for people with disabilities to drive vehicles with adaptive devices. Taking advantage of these opportunities, however, can be time consuming and, sometimes, frustrating.

The information in this brochure is based on the experience of driver rehabilitation specialists and other professionals who work with individuals who require adaptive devices for their motor vehicles. It is centered around a proven process —evaluating your needs, selecting the right vehicle, choosing a qualified dealer to modify your vehicle, being trained, maintaining your vehicle — that can help you avoid costly mistakes when purchasing and modifying a vehicle with adaptive equipment.

Also included is general information on cost savings, licensing requirements, and organizations to contact for help. Although the brochure focuses on drivers of modified vehicles, each section contains important information for people who drive passengers with disabilities.

Investigate Cost Saving Opportunities &Licensing Requirements

Cost Saving Opportunities

The costs associated with modifying a vehicle vary greatly. A new vehicle modified with adaptive equipment can cost from $20,000 to $80,000. Therefore, whether you are modifying a vehicle you own or purchasing a new vehicle with adaptive equipment, it pays to investigate public and private opportunities for financial assistance.

There are programs that help pay part or all of the cost of vehicle modification, depending on the cause and nature of the disability. For information, contact your state’s Department of Vocational Rehabilitation or another agency that provides vocational services, and, if appropriate, the Department of Veterans Affairs. You can find phone numbers for these state and federal agencies in a local phone book. Also, consider the following.

Many nonprofit associations that advocate for individuals with disabilities have grant programs that help pay for adaptive devices.
If you have private health insurance or workers’ compensation, you may be covered for adaptive devices and vehicle modification. Check with your insurance carrier.
Many manufacturers have rebate or reimbursement plans for modified vehicles. When you are ready to make a purchase, find out if there is such a dealer in your area.
Some states waive the sales tax for adaptive devices if you have a doctor’s prescription for their use.
You may be eligible for savings when submitting your federal income tax return. Check with a qualified tax consultant to find out if the cost of your adaptive devices will help you qualify for a medical deduction.

Licensing Requirements

All states require a valid learner’s permit or driver’s license to receive an on–the–road evaluation. You cannot be denied the opportunity to apply for a permit or license because you have a disability. However, you may receive a restricted license, based on your use of adaptive devices.

Evaluate Your Needs

Driver rehabilitation specialists perform comprehensive evaluations to identify the adaptive equipment most suited to your needs. A complete evaluation includes vision screening and, in general, assesses:

Muscle strength, flexibility, and range of motion
Coordination and reaction time
Judgment and decision making abilities
Ability to drive with adaptive equipment

Upon completion of an evaluation, you should receive a report containing specific recommendations on driving requirements or restrictions, and a complete list of recommended vehicle modifications.

Finding a Qualified Evaluator

To find a qualified evaluator in your area, contact a local rehabilitation center or call the Association for Driver Rehabilitation Specialists (ADED). The phone number is in the resource section. The Association maintains a data base of certified driver rehabilitation specialists throughout the country. Your insurance company may pay for the evaluation. Find out if you need a physician’s prescription or other documen-tation to receive benefits.

Being Prepared for an Evaluation

Consult with your physician to make sure you are physically and psychologically prepared to drive. Being evaluated too soon after an injury or other trauma may indicate the need for adaptive equipment you will not need in the future. When going for an evaluation, bring any equipment you normally use, e.g., a walker or neck brace. Tell the evaluator if you are planning to modify your wheelchair or obtain a new one.

Evaluating Passengers with Disabilities

Evaluators also consult on compatibility and transportation safety issues for passengers with disabilities. They assess the type of seating needed and the person’s ability to exit and enter the vehicle. They provide advice on the purchase of modified vehicles and recommend appropriate wheelchair lifts or other equipment for a vehicle you own. If you have a child who requires a special type of safety seat, evaluators make sure the seat fits your child properly. They also make sure you can properly install the seat in your vehicle.

Select the Right Vehicle

Selecting a vehicle for modification requires collaboration among you, your evaluator, and a qualified vehicle modification dealer. Although the purchase or lease of a vehicle is your responsibility, making sure the vehicle can be properly modified is the responsibility of the vehicle modification dealer. Therefore, take the time to consult with a qualified dealer and your evaluator before making your final purchase. It will save you time and money. Be aware that you will need insurance while your vehicle is being modified, even though it is off the road.

The following questions can help with vehicle selection. They can also help determine if you can modify a vehicle you own.

Does the necessary adaptive equipment require a van, or will another passenger vehicle suffice?
Can the vehicle accommodate the equipment that needs to be installed?
Will there be enough space to accommodate your family or other passengers once the vehicle is modified?
Is there adequate parking space at home and at work for the vehicle and for loading/unloading a wheelchair?
Is there adequate parking space to maneuver if you use a walker?
What additional options are necessary for the safe operation of the vehicle?

If a third party is paying for the vehicle, adaptive devices, or modification costs, find out if there are any limitations or restrictions on what is covered. Always get a written statement on what a funding agency will pay before making your purchase.

Choose a Qualified Dealer to Modify Your Vehicle

Even a half inch change in the lowering of a van floor can affect a driver’s ability to use equipment or to have an unobstructed view of the road; so, take time to find a qualified dealer to modify your vehicle. Begin with a phone inquiry to find out about credentials, experience, and references. Ask questions about how they operate. Do they work with evaluators? Will they look at your vehicle before you purchase it? Do they require a prescription from a physician or other driver evaluation specialist? How long will it take before they can start work on your vehicle? Do they provide training on how to use the adaptive equipment?

If you are satisfied with the answers you receive, check references; then arrange to visit the dealer’s facility. Additional information to consider is listed below.

Are they members of the National Mobility Equipment Dealers Association (NMEDA) or another organization that has vehicle conversion standards?
What type of training has the staff received?
What type of warranty do they provide on their work?
Do they provide ongoing service and maintenance?
Do they stock replacement parts?

Once you are comfortable with the dealer’s qualifications, you will want to ask specific questions, such as:

How much will the modification cost?
Will they accept third party payment?
How long will it take to modify the vehicle?
Can the equipment be transferred to a new vehicle in the future?
Will they need to modify existing safety features to install the adaptive equipment?

While your vehicle is being modified, you will, most likely, need to be available for fittings. This avoids additional waiting time for adjustments once the equipment is fully installed. Without proper fittings you may have problems with the safe operation of the vehicle and have to go back for adjustments.

Some State Agencies specify the dealer you must use if you want reimbursement.

Obtain Training on the Use of New Equipment

Both new and experienced drivers need training on how to safely use new adaptive equipment. Your equipment dealer and evaluator should provide information and off-road instruction. You will also need to practice driving under the instruction of a qualified driving instructor until you both feel comfortable with your skills. Bring a family member or other significant person who drives to all your training sessions. It’s important to have someone else who can drive your vehicle in case of an emergency.

Some state vocational rehabilitation departments pay for driver training under specified circumstances. At a minimum, their staff can help you locate a qualified instructor. If your evaluator does not provide on-the-road instruction, ask him or her for a recommendation. You can also inquire at your local motor vehicle administration office.

Maintain Your Vehicle

Regular maintenance is important for keeping your vehicle and adaptive equipment safe and reliable. It may also be mandatory for compliance with the terms of your warranty. Some warranties specify a time period during which adaptive equipment must be inspected. These “check ups” for equipment may differ from those for your vehicle. Make sure you or your modifier submits all warranty cards for all equipment to ensure coverage and so manufacturers can contact you in case of a recall.

For additional copies of this brochure and other important vehicle safety information, you can contact DOT’s web site at www.nhtsa.dot.gov and the DOT Auto Safety Hotline: 888-DASH-2-DOT (888-327-4236).

Resources

The Association for Driver Rehabilitation Specialists (ADED)
2425 N. Center Street # 369, Hickory, NC 28601
(866) 672-9466
www.driver-ed.org
www.aded.net

National Mobility Equipment Dealers Association (NMEDA)
11211 N. Nebraska Ave., Suite A5, Tampa, FL 33612
(800) 833-0427
www.nmeda.org

AAA
1000 AAA Drive, Heathrow, FL 32746-5063
(404) 444-7961
www.aaa.com

Department of Veteran Affairs
(800) 827-1000
www.va.gov

State Departments of Vocational Rehabilitation
Listed in telephone book.

The following manufacturers offer rebates or reimbursements on new vehicle modification.

Daimler Chrysler Corporation
(800) 255-9877
(TDD Users: (800) 922-3826)
www.automobility.daimlerchrysler.com

Ford Motor Company
(800) 952-2248
(TDD Users: (800) TDD-0312)
www.ford.com/mobilitymotoring

General Motors Corporation
(800) 323-9935
(TDD Users: (800) TDD-9935)
www.gmmobility.com

Saturn
(800) 553-6000, Prompt 3
(TDD Users: (800) 833-6000)
www.saturn.com

Volkswagen
(800) 822-8987
www.vw.com

Audi
(800) 822-2834
www.audiusa.com