Tag Archives: disabilities

Invisible DisAbilities

Invisible DisAbilities

In general, the term disAbility is often used to describe an ongoing physical challenge. This could be a bump in life that can be well managed or a mountain that creates serious changes and loss. Either way, this term should not be used to describe a person as weaker or lesser than anyone else. Every person has a purpose, special uniqueness and value, no matter what hurdles they may face.

In addition, just because a person has a disAbility, does not mean they are disAbled. Many living with these challenges are still fully active in their work, families, sports or hobbies. Some with disAbilities are able to work full or part time, but struggle to get through their day, with little or no energy for other things. Others are unable to maintain gainful or substantial employment due to their disAbility, have trouble with daily living activities and/or need assistance with their care.

According to the Americans with Disabilities Act of 1990 (ADA) an individual with a disAbility is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment (Disability Discrimination).

Furthermore, “A person is considered to have a disability if he or she has difficulty performing certain functions (seeing, hearing, talking, walking, climbing stairs and lifting and carrying), or has difficulty performing activities of daily living, or has difficulty with certain social roles (doing school work for children, working at a job and around the house for adults)” (Disabilities Affect One-Fifth of All Americans).

Often people think the term, disAbility, only refers to people using a wheelchair or walker. On the contrary,  the 1994-1995 Survey of Income and Program Participation (SIPP) found that 26 million Americans (almost 1 in 10) were considered to have a severe disAbility, while only 1.8 million used a wheelchair and 5.2 million used a cane, crutches or walker (Americans with Disabilities 94-95). In other words, 74% of Americans who live with a severe disAbility do not use such devices. Therefore, a disAbility cannot be determined solely on whether or not a person uses assistive equipment.

The term invisible disAbilities refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunctions, brain injuries, learning differences and mental health disorders, as well as hearing and vision impairments.  These are not always obvious to the onlooker, but can sometimes or always limit daily activities, range from mild challenges to severe limitations and vary from person to person.

Also, someone who has a visible impairment or uses an assistive device such as a wheelchair, walker or cane can also have invisible disAbilities. For example, whether or not a person utilizes an assistive device, if they are debilitated by such symptoms as described above, they live with invisible disAbilities.

Unfortunately, people often judge others by what they see and often conclude a person can or cannot do something by the way they look. This can be equally frustrating for those who may appear unable, but are perfectly capable, as well as those who appear able, but are not.

The bottom line is that everyone with a disAbility is different, with varying challenges and needs, as well as abilities and attributes.  Thus, we all should learn to listen with our ears, instead of judging with our eyes.

Winter Weather Tips for People with DisAbilities: Don’t Get Left Out in the Cold

From commuting to work in your wheelchair accessible vehicle to visiting friends and family following the busy holiday season, here are some winter safety tips for people living with disAbilities.

Function Over Fashion
Dress in layers. Air gets trapped between the layers and acts as insulation. Wearing multiple layers of clothing also gives you the ability to remove layers when you perspire or add them when you get chilled.

Try to avoid wearing cotton clothing, as it will stay wet once it gets wet. Consider moisture wicking, polypropylene and other lightweight, man-made fabrics.

Wear warm gloves. Gripper driving gloves not only keep your hands warm but can help prevent slipping when sleet or ice stick to wheelchairs and other surfaces. Carry an extra pair of gloves with you, in case one pair gets wet.

Protect Your Face
Use sunscreen. People don’t think about it but when the sun reflects off of snow, severe sunburns can occur.

Another good idea is to use Vaseline on exposed areas of your face. It helps prevent your face from getting dry or chapped by acting as a moisture insulator.

Getting Around
Using a wheelchair in snow can be very strenuous, especially if you’re not accustomed to it. Always be careful when maneuvering through the snow, as the extra exertion could have negative effects on your body. If possible, have somebody with you to help.

Pneumatic tires or those made from soft rubber can give wheelchairs better traction on snow and ice. An alternative is to use mountain bike tires that have knobby treads.

Always take your time on slippery surfaces so you don’t go into a slide and lose control. Be especially mindful while driving a mobility vehicle and keep winter driving tips for maneuvering over slush, ice and snow in mind.

Batteries can lose 60% of their charge when temps get cold, so keep them warm with covers.

Make sure you take proper care of your handicap accessible vehicle by following the appropriate winter car-care suggestions.

Don’t Forget Your Pets
Dogs can suffer from hypothermia and frostbite, too. If you’re accompanied by a service animal or taking a pet outside, consider a dog coat and boots for their feet. It’s also a good idea to keep a blanket in your vehicle for your pet.

Paratransit Services

Paratransit Services have vastly changed the way individuals with disAbilities get around their hometown, increasing both their freedom and independence to travel where they want, when they want.

What Is Paratransit?
Paratransit is a specialized, door-to-door transport service for people with disabilities who are not able to ride fixed-route public transportation. This may be due to an inability to:

  • Board, ride or disembark independently from any readily accessible vehicle on the regular fixed-route system.
  • Access existing accessible fixed-route transportation because that transportation is not available at the needed time on that route.
  • Get to boarding/alighting locations of regular public transportation.

Typically, paratransit is provided in a demand-responsive mode (i.e., the person with a disAbility must make a telephone call to arrange service).

The passage of the Americans with Disabilities Act (ADA) in 1990 recognized that people with disAbilities have the same rights as other citizens to access services and facilities that are available to the public, including transportation. The U.S. Department of Transportation (DOT) is responsible for the enforcement of ADA’s transportation requirements.

Eligibility Requirements
Since most true paratransit services are subsidized by federal, state or county governments, or other municipal agencies, users must be able to meet one of the following three eligibility requirements. (Note: Individuals may be eligible for paratransit on the basis of a permanent or temporary disability. The individual must meet one of the three eligibility criteria, whether permanently or for a limited period of time.)

Category 1:
Individuals who are unable, because of a physical or mental impairment, to board, ride or disembark independently from any readily accessible vehicle on the regular fixed-route system. Among others, this category includes people with mental or visual impairments who, as a result of their disability, cannot navigate the system. This means that, if an individual needs an attendant to board, ride or disembark from an accessible fixed-route vehicle (including navigating the system), the individual is eligible for paratransit.

Category 2:
Also eligible are those people with a physical or mental impairment who could use accessible fixed-route transportation, but the accessible fixed-route transportation is not available at the needed time on a particular route (the accessible vehicle is down for maintenance, the lift cannot be deployed, etc.).

Category 3:
Any individual with a specific impairment-related condition that prevents that person from traveling to a boarding location or from a disembarking location on the system. In this case, the impairment must prevent travel to or from a fixed-route stop. Significant inconvenience or difficulty does not form a basis for eligibility under this section. Further, barriers not under control of the public entity providing the fixed-route service (such as distance or weather) do not by themselves form a basis for eligibility under this section. These situations are resolved on a case-by-case basis, determined by evaluating the interaction between the impairment-related condition and the barrier in question.

Costs
Again, since most true paratransit services are subsidized, the cost to the rider can be very low, as opposed, for example, to the cost of an accessible commercial taxi or limousine service, which provides door-to-door service but does not qualify as a true paratransit service. It should be noted that Medicare does not pay for transportation services except in the case of emergency.

When you contact a paratransit service through one of the methods outlined below, you should specifically request information about such things as cost per trip, advance notice requirements, scheduling of return transportation, etc.

Increase Your Awareness On DisAbilities

Anyone, at any time, could acquire a disAbility. We see, read and hear about it almost every day. So, we must educate ourselves and learn what those with disAbilities need us to understand:

  • DisAbilities affect many lives and most people do their best to enjoy their lives. No need to feel sorry.
  • Don’t refer to the person as a disAbled person or handicapped, a better term to use is person with a disAbility.
  • Just seeing the disAbility is wrong. They are people with different abilities.
    · The person will always be who they are. What they like, feel, care about and know is not defined by the their challenges.
    · We each have different frames of mind. Interact with the person, not the disAbility.
  • Parking spaces are valuable. Using an accessible space when you don’t need it is highly frowned upon.
  • Don’t push or touch a wheelchair unless you ask first. Some people may take offense of you trying to help, others may be grateful.
  • Always respect personal space.
  • Don’t ask a person in a wheelchair to hold things for you.
  • When speaking at length with someone in a wheelchair, if available grab a seat or kneel down so you are on the same level and can hear you better.
  • Always talking about the disAbility or referring to it is annoying and uncomfortable.
    · DisAbilities should not always be the topic of discussion.
    · You don’t have to be scared, or feel you have to know the “right” thing to say. Being honest and real is enough.
  • Although some may be physically constrained, that doesn’t mean they don’t have something to contribute, or ways in which they can be involved.
    · Being involved and a part of everyday, regular life is important.
    · Just because a person looks or appears like they don’t understand, doesn’t mean they don’t.
  • Think before you speak and act.

 Simply understanding and seeking further knowledge about things you are not sure of is key. People with disAbilities want to  and should be treated as equals. This is why broadening everyone’s knowledge on disabilities is important. NMEDA’s awareness campaign, National Mobility Awareness Month (in May), helps show folks that seniors and people with disAbilities can live active, mobile lifestyles – a need we understand. We hope to educate people on different disAbilities and, in turn, hope that more people will become aware and spread the knowledge.

Financing A Wheelchair Accessible Vehicle

One of the top reasons people with disAbilities don’t own adequate transportation is because they cannot afford it. The good news is there are a variety of options to consider when you’re looking for financing to purchase a wheelchair accessible vehicle. Don’t hesitate to do your homework and pursue all the possibilities that might be available out there. In addition to the traditional financing sources available from a vehicle dealership you may also want to consider:

Third Party Sources
There are numerous nonprofit groups and funding programs that can provide funding for a wheelchair accessible vehicle. But you will need to do your research to find out who can help. For example, the Muscular Dystrophy Family Foundation might be able to help if you have Muscular Dystrophy or United Cerebral Palsy may be able to assist with resources if you have Cerebral Palsy. Other philanthropic groups like the Masons, the Jaycees, and Easter Seals may provide assistance, as well.

The PASS Program
If you are on Social Security Income (SSI), you may want to take a look at the PASS Program. PASS stands for Plan to Achieve Self Success and is a program that provides the resources to help you reach a predetermined goal. For example, if you said you needed a wheelchair accessible vehicle to get to work or to attend school, the money for the vehicle would be provided each month to cover the payments.

Fundraisers
They may not be for everyone, but they can be effective and many people have successfully raised the money to pay for a wheelchair accessible vehicle with a fundraiser. Fundraising events can be held by family, friends, schools, churches, just about anyone who can rally a group of people together to work and contribute towards your cause.

Vocational Rehabilitation
Assistance will vary depending on where you live but the Bureau of Rehabilitation Services in your state may be able to help pay for the modifications to your vehicle. Many of the original equipment manufacturers (OEMs) may also offer financial assistance.