Category Archives: information

Myasthenia Gravis Awareness

Myasthenia Gravis (pronounced My-as-theen-ee-a Grav-us) comes from the Greek and Latin words meaning “grave muscular weakness.” The most common form of MG is a chronic autoimmune neuromuscular disorder that is characterized by fluctuating weakness of the voluntary muscle groups. The prevalence of MG in the United States is estimated to be about 20/100,000 population. However, MG is probably under diagnosed and the prevalence may be higher. Myasthenia Gravis occurs in all races, both genders, and at any age. MG is not thought to be directly inherited nor is it contagious. It does occasionally occur in more than one member of the same family.

The voluntary muscles of the entire body are controlled by nerve impulses that arise in the brain. These nerve impulses travel down the nerves to the place where the nerves meet the muscle fibers. Nerve fibers do not actually connect with muscle fibers. There is a space between the nerve ending and muscle fiber; this space is called the neuromuscular junction.

When the nerve impulse originating in the brain arrives at the nerve ending, it releases a chemical called acetylcholine. Acetylcholine travels across the space to the muscle fiber side of the neuromuscular junction where it attaches to many receptor sites. The muscle contracts when enough of the receptor sites have been activated by the acetylcholine. In MG, there can be as much as an 80% reduction in the number of these receptor sites. The reduction in the number of receptor sites is caused by an antibody that destroys or blocks the receptor site.

Antibodies are proteins that play an important role in the immune system. They are normally directed at foreign proteins called antigens that attack the body. Such foreign proteins include bacteria and viruses. Antibodies help the body to protect itself from these foreign proteins. For reasons not well understood, the immune system of the person with MG makes antibodies against the receptor sites of the neuromuscular junction. Abnormal antibodies can be measured in the blood of many people with MG. The antibodies destroy the receptor sites more rapidly than the body can replace them. Muscle weakness occurs when acetylcholine cannot activate enough receptor sites at the neuromuscular junction.

This Information and more can be found at The Myasthenia Gravis Foundation of America’s website

Aphasia Awareness

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Aphasia is a disorder stemming from damage to the language portion of the brain, usually the left side. Aphasia is a communication disorder that interferes with the ability to process, understand or speak language. There are varying degrees of Aphasia from mild to severe. Aphasia can also cause a difficulty in reading or writing. Aphasia can occur from strokes, head injuries and from brain tumors. It is more common in adults but can also affect children.

Some people with aphasia may understand communication from others while not being able to speak themselves. Others with aphasia may not be able to speak or listen to others effectively. Aphasia usually does not affect thinking skills, only those parts of the brain required for communication.

Post-Traumatic Stress Disorder Awareness

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In order to bring greater awareness to the issue of Post-Traumatic Stress Disorder (PTSD), the United States Senate designated June 27th as National PTSD Awareness Day. In addition, June has been designated as PTSD Awareness Month by the National Center for PTSD (NCPTSD).

PTSD is an anxiety disorder resulting from exposure to a single traumatic event or multiple traumatic events, such as sexual or physical assault, natural or man-made disaster, and war-related combat stress. Symptoms of PTSD include persistent intrusive thoughts and distressing dreams about the traumatic event, triggered emotional responses to reminders of the trauma, efforts to avoid thinking or talking about the trauma, and persistent hyper-vigilance for cues that indicate additional danger or trauma re-occurring.

An estimated 70 percent of adults in the United States have experienced a traumatic event at least once in their lives and up to 20 percent of these people go on to develop posttraumatic stress disorder, or PTSD.
An estimated 5 percent of Americans—more than 13 million people—have PTSD at any given time.
Approximately 8 percent of all adults—1 of 13 people in this country—will develop PTSD during their lifetime.
An estimated 1 out of 10 women will get PTSD at some time in their lives. Women are about twice as likely as men to develop PTSD.

Summer Travel Guide: Booking Accessible Lodging

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Longer, sun-filled days mean you may be in the midst of finalizing arrangements for summer vacation plans. While accessible travel options have seen major upgrades in the past few years with new aircraft regulations and increased accessible vehicle availability, travelers with disabilities are still often faced with difficulties when it comes to accessible lodging. Inaccurate descriptions and miscommunications are the leading causes of issues upon arrival. If you want to ensure your vacation plans go off without a hitch, be sure to take extra measures and follow these booking tips.

When booking a hotel room or other type of lodging, be advised that ‘Accessible’ or ‘ADA Compliant’ rooms may not meet your specific needs. The features that constitute these designations may vary across the country and around the world.

Before committing to a hotel, cruise, resort, etc., be sure to speak directly to a representative at the actual location. Whether it’s via phone or email, you’ll need to describe your exact needs when it comes to accessibility and a person who is familiar with the establishment will be your best bet as far as accurate answers go.

Ask reservation agents to take pictures of their accessible accommodations. With the widespread use of smartphones and tablets, this has become a pretty simple request, and one that can make a huge impact on your vacation.

Making a reservation at a hotel does not guarantee you a specific room, but rather locks you in at the chosen rate. In order to be absolutely certain that your accessible room will be ready for you, you’ll need to ask the booking agent to ‘block’ it.

If in doubt, ask for measurements. A floor plan of the room, door widths, bed height, etc. can all be excellent tools in helping you determine if the accommodations will meet your needs.

Some hotels pools offer a zero-depth entrance or pool lifts, finding out in advance is helpful for planning purposes.

If you are having a hard time getting straight answers from the person you are speaking to, don’t hesitate to take your business elsewhere. There are usually a number of available options when it comes to lodging at any destination and you’ll likely be better off choosing a location that is willing to work with you.

Accessibility when it comes to overnight accommodations shouldn’t stop you from having the trip you deserve. Following these tips when booking your rooms or rentals can help make sure your next vacation is one you’ll be bragging to your friends about.

The Difference Between Service, Therapy and Emotional Support Animals

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Many times, the terms service, therapy and emotional support are mistakenly used interchangeably to describe an animal accompanying a person with a disability. While animals falling into each of these categories can be invaluable additions to the lives of their owners, their training and characteristics are notably different and as such they have varying responsibilities and rights.

Service Animals
Undergoing rigorous and highly specific training, service animals are taught to provide special, sometimes life-saving services to persons with disabilities. Dogs are most commonly used for this type of work, with certain breeds, such as Golden Retrievers and Labrador Retrievers, being popular for their temperament, versatility, size and intelligence. Due to the nature of their roles, service dogs are granted certain rights under the Americans with Disabilities Act, like being allowed to accompany their owners into establishments inside which pets are not generally allowed. Service dogs can be trained to provide countless services to their owner depending on his or her needs, from alerting their owners to the sounds of smoke alarms or ringing phones to pulling their wheelchairs or leading them through a crowd.

Therapy Animals
Therapy animals also receive extensive training but their role in a person’s life is a little different than that of a service dog. These animals provide psychological and physiological therapy to individuals other than their handlers, visiting hospitals, schools, nursing homes and other such institutions. These animals are trained to socialize and interact with those around them during their time on duty, participating in various activities while maintaining a calm demeanor. While dogs are also common in animal-assisted therapy, horses and dolphins, amongst many others, have been known to take on the challenge. Professional handlers may not be in charge of an animal’s training, however their training must meet certain criteria as specified for the organization for which they will work.

Emotional Support Animals
While emotional support animals are not required to undergo special training, their presence in a person’s life can be tremendously beneficial. By providing comfort, support and a calming presence, this type of animal can help relieve anxiety and reduce stress. Emotional support animals do not fall under the same category as service or therapy animals, however they are afforded certain rights. The Fair Housing Act allows ESAs to bypass “no pet” policies in housing complexes while the Air Carrier Access Act permits these animals to travel alongside their companions in an aircraft, as long as they possess the proper documentation.

Service, therapy and emotional support animals offer guidance and assistance to their owners or handlers in unique yet indispensable ways. For a person with a disability, these types of animals can make a world of difference.