Tag Archives: Children

Aphasia Awareness

Aphasia is a disorder stemming from damage to the language portion of the brain, usually the left side. Aphasia is a communication disorder that interferes with the ability to process, understand or speak language. There are varying degrees of Aphasia from mild to severe. Aphasia can also cause a difficulty in reading or writing. Aphasia can occur from strokes, head injuries and from brain tumors. It is more common in adults but can also affect children.

Some people with aphasia may understand communication from others while not being able to speak themselves. Others with aphasia may not be able to speak or listen to others effectively. Aphasia usually does not affect thinking skills, only those parts of the brain required for communication.

Lupus Awareness Month

Leave a reply

Lupus is a chronic, autoimmune disease that can damage any part of the body (skin, joints, and/or organs inside the body). Chronic means that the signs and symptoms tend to last longer than six weeks and often for many years.

In lupus, something goes wrong with your immune system, which is the part of the body that fights off viruses, bacteria, and germs (“foreign invaders,” like the flu). Normally our immune system produces proteins called antibodies that protect the body from these invaders. Autoimmune means your immune system cannot tell the difference between these foreign invaders and your body’s healthy tissues (“auto” means “self”) and creates autoantibodies that attack and destroy healthy tissue. These autoantibodies cause inflammation, pain, and damage in various parts of the body.

Lupus is also a disease of flares (the symptoms worsen and you feel ill) and remissions (the symptoms improve and you feel better).

These are some additional facts about lupus that you should know:

Lupus is not contagious, not even through sexual contact. You cannot “catch” lupus from someone or “give” lupus to someone.
Lupus is not like or related to cancer. Cancer is a condition of malignant, abnormal tissues that grow rapidly and spread into surrounding tissues. Lupus is an autoimmune disease, as described above.
Lupus is not like or related to HIV (Human Immune Deficiency Virus) or AIDS (Acquired Immune Deficiency Syndrome). In HIV or AIDS the immune system is underactive; in lupus, the immune system is overactive.
Lupus can range from mild to life-threatening and should always be treated by a doctor. With good medical care, most people with lupus can lead a full life.
Our research estimates that at least 1.5 million Americans have lupus. The actual number may be higher; however, there have been no large-scale studies to show the actual number of people in the U.S. living with lupus.
More than 16,000 new cases of lupus are reported annually across the country.
It is believed that 5 million people throughout the world have a form of lupus.
Lupus strikes mostly women of childbearing age (15-44). However, men, children, and teenagers develop lupus, too.
Women of color are two to three times more likely to develop lupus than Caucasians.
People of all races and ethnic groups can develop lupus.

What are the common symptoms of lupus?
Because lupus can affect so many different organs, a wide range of symptoms can occur. These symptoms may come and go, and different symptoms may appear at different times during the course of the disease.

The most common symptoms of lupus, which are the same for females and males, are:

Extreme fatigue (tiredness)
Headaches
Painful or swollen joints
Fever
Anemia (low numbers of red blood cells or hemoglobin, or low total blood volume)
Swelling (edema) in feet, legs, hands, and/or around eyes
Pain in chest on deep breathing (pleurisy)
Butterfly-shaped rash across cheeks and nose
Sun- or light-sensitivity (photosensitivity)
Hair loss
Abnormal blood clotting
Fingers turning white and/or blue when cold (Raynaud’s phenomenon)
Mouth or nose ulcers

Many of these symptoms occur in other illnesses. In fact, lupus is sometimes called “the great imitator” because its symptoms are often like the symptoms of rheumatoid arthritis, blood disorders, fibromyalgia, diabetes, thyroid problems, Lyme disease, and a number of heart, lung, muscle, and bone diseases.

Purple Up For Military Kids!

Leave a reply

Purple Up For Military Kids!

April is Month of the Military Child, a time to recognize the sacrifices made by military families and their children. On April 15 you can wear purple to show your support for our military families.

Wearing the color purple is a visible way to show support and thank military youth for their strength and sacrifices. Why purple? Purple is the color that symbolizes all branches of the military, as it is a combination of Army green, Marine red, and Coast Guard, Air Force, and Navy blue.

Semper Fi Fund: Our mission is crucial. Our duty is clear.

Leave a reply

About The SEMPER FI FUND (SFF):
The Semper Fi Fund, and its program America’s Fund, provide immediate financial assistance and lifetime support to post 9/11 wounded, critically ill and injured members of all branches of the U.S. Armed Forces, and their families, ensuring that they have the resources they need during their recovery and transition back to their communities. Since establishing the Semper Fi Fund in 2004, they’ve issued more than 86,000 grants, totaling more than $102 million in assistance to over 13,300 of our heroes and their families.

Who Are They?:
The Semper Fi Fund was created by a group of Marine Corps spouses nine years ago, and those same women run the Fund today alongside other spouses from all service branches, retired service members, all of whom intimately know the needs of our military families. They have been by our injured and ill service members’ sides from day one, helping them as they navigate lengthy recoveries and rejoin their communities.

How They Help:
Financial, emotional, and tiered support for our injured/ill service members and their families through the following programs: Family Support, Adaptive Housing, Adaptive Transportation, Specialized Equipment, Education and Career Transitioning, Rehabilitative Sports programs, and more.

Who They Help:
Qualifying post 9/11 Marines, Sailors, Soldiers, Airmen, Coast Guardsmen, and reservists with amputations, spinal cord injuries, Traumatic Brain Injury (TBI), severe Post Traumatic Stress Disorder (PTSD), burns, blindness, other physical injuries, or those suffering from life-threatening illnesses. We also help spouses and children of active duty service members who face a life threatening illness or injury.

How Are They Unique:
The Semper Fi Fund has been awarded the highest ratings from watch dog groups: A+ Top Rated Charity from CharityWatch, and we are one of only three veteran nonprofits to receive this rating in recent years; and 4 Stars from Charity Navigator a rating only given to 4% of all charities. They maintain an extremely low overhead – 6% and provide rapid assistance with no red tape.

How They Raise Funding:
The Semper Fi Fund relies completely on donations from generous individuals, corporations, foundations, and community groups. In an effort to keep their fundraising and administrative costs low, they do not receive government funding or use direct mail campaigns. Their communities across the country host fundraising and awareness events for their mission, both big and small: golf tournaments, motorcycle poker runs, 5/10K races, dinners, and contests – whatever their passion may be! Their are members of the Combined Federal Campaign, through which federal, civilian, postal, and military donors can support us. They encourage all citizens across America to join them in their quest to support our military members who have sacrificed so much in the service to our country.

Their Philosophy:
The basic ideal that drives our efforts is simple: for as much as our heroes have sacrificed, they deserve the best care and support available in their hour of need. They are committed to being there at the time of injury or illness and for a lifetime if needed.

Looking Forward:
The Semper Fi Fund has been successful over the years thanks to their loyal supporters, both individuals and corporations. Yet our challenges continue to intensify due to the level of severity of injury, illness, and post-traumatic stress unique to the length of war on terrorism. These critical injuries are brought home and often call for a lifetime of assistance.

Tax-deductible contributions from people like you make up our lifeblood; whether donations are large or small, a one-time gift or ongoing endowment, every individual or corporation has the power to make a real difference, here and now, no matter where they are in the world.

The Semper Fi Fund is forever grateful to each of their supporters who share in their ongoing mission.

Please help them help those who have given so much in the name of freedom.

How To Choose An Accessible Vehicle For A Child

Leave a reply

Wheelchair vans are often needed by families who have children with disAbilities. Vehicles with special features are available and/or can be converted to accommodate them. The most important step is to start with an appointment with a mobility specialist.

Here are a few facts needed to help determine which accessible option best fits the needs of your child and your family.

The Child’s Size
A mobility consultant should be incredibly thorough in compiling the details such as wheelchair width and height, your child’s height while seated in the wheelchair, and other essential information, which should help identify the perfect van for your family.

Your child’s age and size are factors, too. If your child is young/small the vehicle that they easily fit into now could possibly be out grown. It is important to not only think of their needs now, but also to keep in mind that their needs may change in the future.

The Family’s Size
Consider the size of your family. A big family (5-7 children) might need the extra room provided by a full-size van. For smaller families, an adapted minivan should work nicely, and both vehicle styles can be equipped for wheelchair accessibility. Keep in mind that even an only child will have friends who will join you for an occasional outing.

The Child’s Condition
Along with wheelchair size, your child’s condition has tremendous bearing on vehicle selection. When a child with limited mobility travels with a ventilator or feeding tube, the vehicle must accommodate it. In such situations, rear entry access is often the better option.

Side entry vans require the wheelchair user to maneuver into position; an operating ventilator or feeding tube on an independent portable stand can easily make positioning awkward. Rear entry access eliminates the need to maneuver–the wheelchair and ancillary equipment roll directly into position from the back of the van.

Seating
If you or a caretaker needs to assist your child, it would be helpful to have a seat right next to the wheelchair, as the front passenger seat can make interaction awkward.

Now is a good time to talk about the front-passenger seat, which can be adapted for portability, so you can remove it completely. With a wheelchair docking system installed, the coveted front-passenger position is wheelchair-ready.

That said, size definitely matters here. The laws in some states restrict the size of a child riding in that position, with a typical recommendation of 50 lbs.+ and the ability to tolerate the force of a deployed airbag. A child with a frail or sensitive physical condition should be seated in the middle of the vehicle for safety. Make sure to familiarize yourself with your state’s seat-belt laws for wheelchair passengers.

Passengers
When there are several passengers in the van, middle seating in the vehicle would put your child at the center of attention and always part of the fun. The side entry accessible van has an array of configuration possibilities, including jump seats and the potential for passenger seating in front, alongside, and behind the wheelchair user in any accessible van.

Focus on the Future
When you find the accessible vehicle that fits the needs of you, your child and family now but are concerned about the changes that may come over time, discuss them with your mobility consultant. Future you has a few options. Keep in mind that additional modifications can be made to your vehicle to better fit you and your family. Another option future you will have is to trade in your vehicle for a newer one that will fit your needs better.