Category Archives: Mobility

Mobility needs for wheelchair users including wheelchair vans, ramps, foot and hand controls.

Caregiver Support

Whether you are caring for the elderly or a loved one with a disAbility, most every caregiver should surround their life with resources and relief.

These resources will not only keep you feeling refreshed and renewed, but they’ll help you connect with others, who may have, or be currently experiencing similar lifestyles. In recognizing the different support options available, you’ll find yourself actively combating the chances of caregiver burnout and achieving the best quality care possible for your loved one.

Support is within reach. You just have to know where to look.

Caregiver Support Groups
You may be surprised to learn that a quick internet search can connect you with entire communities of caregivers. Sure, there are plenty of self-help articles and tips and tricks out there, but the value of an honest forum and communal support goes miles.

Find a caregiver forum in your state or region and consider the benefits of sounding off with other members. Bounce ideas and successes off of one another. Share your wisdom and experiences. Ask questions and seek answers.

Forums:

  • provide perspective
  • highlight industry products
  • connect like-minded individuals
  • create a canvas for ongoing conversation
  • offer new tips and tricks
  • and so much more

A forum is a great foundation to replenish your optimism and hope as a caregiver. You may even turn online connections into real life friendships and accountability. And what better way to grow as a caregiver than to do it in the company and strength of a community of caregivers?

Financial Aid
Many caregivers spend upwards of 20 hours per week giving care. It’s no wonder finances and employment opportunities can sometimes be difficult to balance. Don’t count yourself out, though.

Seek education on grants and financial aid. There are many benefits for caregivers such as mobility vehicle loans and income tax return incentives. A little homework can save you money in the long run. Getting ahead on your finances can provide tremendous relief.

Fitness
Explore activities you can experience with your loved one. From adaptive sports to a traditional walk around the block, exercise is a great way to proactively deal with stress and clear the mind.

To take it one step further, consider joining a league in your area. If you’ve become a member of an online forum, ask around about local gatherings and activities or take initiative to start one on your own. The positivity and energy can be contagious for all involved.

Family and Friends
Don’t go it alone. The strongest caregivers know when it’s time to ask for help.

It’s healthy to reach out to those you trust and your family and friends can be awesome support groups. Invite them to step up and come beside you as you provide care for your loved ones and don’t be afraid to walk them through a day in your life. The more they know about your situation and your needs the better they’ll be able to assist in the journey of you and your loved one.

Managing your own stress can make the ultimate difference in the life of the loved one you care for. In caring for you, you’re caring for them.

What is Trisomy 9

The name “Trisomy” means three (“tri”) copies of a chromosome (“somy”). Unlike most individuals, people that have any form of Trisomy are born with a whole or partial third copy of a chromosome, instead of the expected two. For example, a child that has a third copy of the number 21th chromosome, rather then just the pair, have a common disorder called Down’s Syndrome. When the 18th chromosome has been affected, then that better known as Edward’s Syndrome, and again the 13th is Patau’s Syndrome. Trisomy 9 refers to the number 9th chromosome being affected, though due to being so rare it has not yet been given another name.

Duplication resulting in Trisomy 9p

A duplication is an extra copy of a portion of a chromosome. In this case, the extra portion is from chromosome 9. This may also be referred to as a partial Trisomy 9 since what is extra is part of chromosome 9. The extra chromosome 9 material can be present in the middle of one of the arms of chromosome 9 or may be attached to the end of another whole copy of chromosome 9. Some individuals are diagnosed with Trisomy 9p which is where the chromosomes have duplicated the “p” arm, or Trisomy 9q where the “q” arm has been affected.

Mosaic Trisomy 9

The term “mosaic” means that there is a mixture of cell types among the analysed cells. An individual with mosaic Trisomy 9 has some cells with an extra copy of Chromosome 9. Others can also have Mosaic 9 which is where the same thing applies though only with the expected number of chromosomes (two copies of chromosome 9)

Translocation resulting in Trisomy 9p

 Translocations (t) are rearrangements of chromosome material that involve two or more chromosomes. Translocations arise when two chromosomes “break” and switch material. Often, when a translocation arises in a parent it is “balanced”. This means that there is no apparent loss or gain of chromosome material. All the chromosome material that should be there is usually present but is rearranged.

Wheelchair Van Ramp Vs. Wheelchair Van Lift

Choosing a wheelchair ramp over a lift system is a matter of budget and personal preference. Both can get you safely in and out of a new or used wheelchair van; however, handicap lowered-floor vans with ramps tend to be less expensive, take up less space and are more fuel-efficient compared to a full-size van, which is used for most wheelchair-lift applications.

Wheelchair Ramps
Wheelchair van conversion ramps normally come in permanent van conversions where the floor is lowered to allow enough headroom for entering and riding in the vehicle. Most lowered-floor vans come with wheelchair ramps and kneeling systems that lower the wheelchair van and reduce the angle of the ramp. There are two styles of wheelchair ramps—one type folds up in a vertical position, and the other type slides out from the floor of the van.

New and used handicapped accessible vehicles with wheelchair ramps come with either a manual or power conversion. Power wheelchair ramps operate by remote control or by a switch located either on the dash or just inside the side-door panel. Push a button and the door slides open, the ramp extends out and, in cases where a kneeling system is needed, the van lowers. (In case of a power failure, the ramp can be easily operated manually.) Guide your wheelchair or mobility scooter inside and push the button or switch, and the system reverses. Manual systems are spring-loaded to easily fold out and retract into the van.

Wheelchair Lifts
A vehicle wheelchair lift is a mechanical device used to raise a person in a wheelchair effortlessly into a vehicle. Wheelchair lifts are typically installed in full-sized vans.

There are several wheelchair lift types: cassette lifts that slide out from under the van, horizontal folding lifts that provide users better vision through the windows, vertical folding lifts that enable passengers to enter the van without deploying the lift, and platform wheelchair lifts, which are the most basic of wheelchair lifts.

Hydraulic lifts are the most common type, since they allow for heavier steel construction and higher lift capacity. The other type is the electric lift, made with lightweight aluminum and lighter lift capacity. Lifts require either a lowered floor or a raised roof to provide enough headroom for wheelchair passengers to ride comfortably inside their chairs.

Wheelchair lifts work when space limitations or height requirements make a ramp prohibitive. Wheelchair lifts are often less expensive than a lowered-floor conversion with a ramp, but there are other considerations that include difficulty parking due to their size, high gas prices, and if the floor isn’t lowered, then the wheelchair user can’t see out the windows.

Wheelchair Accessible Vehicle: Seating Options

There are many options you will need to consider when purchasing a wheelchair accessible vehicle, especially if you are a first time buyer. It’s our job to make the process easier.

There are several seating options to consider; first, you and your family or your caregiver will need to decide where you want to or are going to sit. This depends on whether you are going to drive from your wheelchair and/or if you are going to be a passenger.

Knowing if you will be transferred into a seat or if you will remain in your wheelchair while traveling is also an important factor.

Seating in a Side Entry vs. Seating in a Rear Entry

Side Entry

  • Offers both mid-section and front seat options (with tie-downs)
  • There are five passenger seats available for family members in a side entry van.
  • A total of six people can be seated in a side entry wheelchair accessible van.
  • The side entry can comfortable fit a wheelchair or power wheelchair, where as a scooter has a less roomier fit.

Rear Entry

  • Only offers the mid-section to rear of the vehicle (with tie-downs)
  • There are four passenger seats available for family members in a rear entry van.
  • Up to six people can be seated in a rear entry wheelchair accessible van.
  • The rear entry can comfortable fit a wheelchair, power wheelchair or a scooter, but
  • If you have a long wheelchair or scooter the rear entry is ideal with over six feet of space, no turning to face forward is necessary.

If you have any questions our Mobility Center can further explain and demonstrate all seating options.

Please feel free to consult us with any additional information you need regarding wheelchair vans and mobility equipment, it’s what we’re here for.

Accessibility in the Workplace

With more and more people with disAbilities entering the workforce each year, the demand for increased accessibility on job sites continues to grow. While many places of employment adhere to ADA standards, there are other things to consider when looking to improve accessibility. If you’ve just started a new job or have found certain difficulties completing your duties at your current position, these two strategies can help better problematic situations.

Speak Up and Ask About Accessibility
Perhaps the building’s entrance is equipped with a ramp and automatic door opener but the door to your office or company suite is not. Maybe the accessible bathroom or stall is too small and difficult to maneuver in, or your cubicle doesn’t allow you to make turns in your chair. Most of these issues have relatively simple solutions and employers shouldn’t be hesitant to requesting changes to the building manager or scheduling the updates themselves. However, if you do not speak up and report these issues, they might go permanently unnoticed. Even if you find that your employer is not convinced that the changes are necessary, be sure to stress to them that workers are likely to be much more productive in an environment they can easily access and feel comfortable in.

If You Have a Disability Don’t Be Afraid To Ask For Help
While we wish every single building or office in the world was 100 percent accessible, sometimes people with disAbilities must work around unavoidable barriers. If you find that there are aspects or areas of your job that you cannot independently complete or access, don’t hesitate to ask for help. Whether it’s by opening a heavy door or carrying your laptop to the conference room, most of your colleagues would be happy to be of assistance. It might be especially helpful to designate a routine for a specific co-worker to help with a task you know you’ll be performing each day.

Whether it’s your first job or where you plan to retire, your place of employment should be comfortable and accessible – an environment in which you can thrive. Report issues and ask for help whenever you need it and you’ll be working towards a fulfilling and rewarding career.