Category Archives: information

Have You Voted For Your Local Hero?

Click here to view the stories and submit your vote!

What is the Local Heroes Contest?
This is the 4th annual National Mobility Awareness Month. During this month NMEDA has an amazing promotion where they encourage people with disAbilities to embody the spirit of Life Moving Forward by raising awareness of the many life-changing mobility vehicle solutions available today.

NMEDA and their members are mobility advocates dedicated to changing the lives of those living with disAbilities by providing access to quality handicap accessible vehicles and adaptive equipment. Whether you are living with a disAbility or have dedicated your time to helping someone who is, they want to hear your story of perseverance and strength.

For your chance to win a FREE wheelchair accessible vehicle enter NMEDA’s contest by telling them what makes you (or your loved one) a Local Hero!

This year they will be giving away 4 handicap accessible vehicles:

  • one to a caregiver
  • one to a senior (60+)
  • one that is battery powered (for in-town driving only)
  • one in the general category.

Over 18 million people in North America are living with restrictive mobility issues. This is your chance to change the lives of just a few of those triumphing in the face of adversity.

Arthritis Awareness

Arthritis is very common but is not well understood. Actually, “arthritis” is not a single disease; it is an informal way of referring to joint pain or joint disease. There are more than 100 different types of arthritis and related conditions. People of all ages, sexes and races can and do have arthritis, and it is the leading cause of disability in America. Nearly 53 million adults and 300,000 children have some type of arthritis. It is most common among women and occurs more frequently as people get older.

Common arthritis joint symptoms include swelling, pain, stiffness and decreased range of motion. Symptoms may come and go. They can be mild, moderate or severe. They may stay about the same for years, but may progress or get worse over time. Severe arthritis can result in chronic pain, inability to do daily activities and make it difficult to walk or climb stairs. Arthritis can cause permanent joint changes. These changes may be visible, such as knobby finger joints, but often the damage can only be seen on X-ray. Some types of arthritis also affect the heart, eyes, lungs, kidneys and skin as well as the joints.

There are different types of arthritis:

Degenerative Arthritis
Osteoarthritis is the most common type of arthritis. When the cartilage – the slick, cushioning surface on the ends of bones – wears away, bone rubs against bone, causing pain, swelling and stiffness. Over time, joints can lose strength and pain may become chronic. Risk factors include excess weight, family history, age and previous injury (an anterior cruciate ligament, or ACL, tear, for example).

When the joint symptoms of osteoarthritis are mild or moderate, they can be managed by:

  • balancing activity with rest
  • using hot and cold therapies
  • regular physical activity
  • maintaining a healthy weight
  • strengthening the muscles around the joint for added support
  • using assistive devices
  • taking over-the-counter (OTC) pain relievers or anti-inflammatory medicines
  • avoiding excessive repetitive movements

If joint symptoms are severe, causing limited mobility and affecting quality of life, some of the above management strategies may be helpful, but joint replacement may be necessary.

Osteoarthritis can prevented by staying active, maintaining a healthy weight, and avoiding injury and repetitive movements.

Inflammatory Arthritis
A healthy immune system is protective. It generates internal inflammation to get rid of infection and prevent disease. But the immune system can go awry, mistakenly attacking the joints with uncontrolled inflammation, potentially causing joint erosion and may damage internal organs, eyes and other parts of the body. Rheumatoid arthritis and psoriatic arthritis are examples of inflammatory arthritis. Researchers believe that a combination of genetics and environmental factors can trigger autoimmunity. Smoking is an example of an environmental risk factor that can trigger rheumatoid arthritis in people with certain genes.

With autoimmune and inflammatory types of arthritis, early diagnosis and aggressive treatment is critical. Slowing disease activity can help minimize or even prevent permanent joint damage. Remission is the goal and may be achieved through the use of one or more medications known as disease-modifying antirheumatic drugs (DMARDs). The goal of treatment is to reduce pain, improve function, and prevent further joint damage.

Infectious Arthritis
A bacterium, virus or fungus can enter the joint and trigger inflammation. Examples of organisms that can infect joints are salmonella and shigella (food poisoning or contamination), chlamydia and gonorrhea (sexually transmitted diseases) and hepatitis C (a blood-to-blood infection, often through shared needles or transfusions). In many cases, timely treatment with antibiotics may clear the joint infection, but sometimes the arthritis becomes chronic.

Metabolic Arthritis
Uric acid is formed as the body breaks down purines, a substance found in human cells and in many foods. Some people have high levels of uric acid because they naturally produce more than is needed or the body can’t get rid of the uric acid quickly enough. In some people the uric acid builds up and forms needle-like crystals in the joint, resulting in sudden spikes of extreme joint pain, or a gout attack. Gout can come and go in episodes or, if uric acid levels aren’t reduced, it can become chronic, causing ongoing pain and disability.

Diagnosing Arthritis
Arthritis diagnosis often begins with a primary care physician, who performs a physical exam and may do blood tests and imaging scans to help determine the type of arthritis. An arthritis specialist, or rheumatologist, should be involved if the diagnosis is uncertain or if the arthritis may be inflammatory. Rheumatologists typically manage ongoing treatment for inflammatory arthritis, gout and other complicated cases. Orthopaedic surgeons do joint surgery, including joint replacements. When the arthritis affects other body systems or parts, other specialists, such as ophthalmologists, dermatologists or dentists, may also be included in the health care team.

Fibromyalgia Awareness

What Is Fibromyalgia?
Fibromyalgia is a disorder that causes muscle pain and fatigue (feeling tired). People with fibromyalgia have “tender points” on the body. Tender points are specific places on the neck, shoulders, back, hips, arms, and legs. These points hurt when pressure is put on them.

People with fibromyalgia may also have other symptoms, such as:

  • Trouble sleeping
  • Morning stiffness
  • Headaches
  • Painful menstrual periods
  • Tingling or numbness in hands and feet
  • Problems with thinking and memory (sometimes called “fibro fog”).

A person may have two or more coexisting chronic pain conditions. Such conditions can include chronic fatigue syndrome, endometriosis, fibromyalgia, inflammatory bowel disease, interstitial cystitis, temporomandibular joint dysfunction, and vulvodynia. It is not known whether these disorders share a common cause.

What Causes Fibromyalgia?
The causes of fibromyalgia are unknown. There may be a number of factors involved. Fibromyalgia has been linked to:

  • Stressful or traumatic events, such as car accidents
  • Repetitive injuries
  • Illness
  • Certain diseases.

Fibromyalgia can also occur on its own.

Some scientists think that a gene or genes might be involved in fibromyalgia. The genes could make a person react strongly to things that other people would not find painful.

Who Is Affected by Fibromyalgia?
Scientists estimate that fibromyalgia affects 5 million Americans 18 or older. Between 80 and 90 percent of people diagnosed with fibromyalgia are women. However, men and children also can have the disorder. Most people are diagnosed during middle age.

People with certain other diseases may be more likely to have fibromyalgia. These diseases include:

  • Rheumatoid arthritis
  • Systemic lupus erythematosus (commonly called lupus)
  • Ankylosing spondylitis (spinal arthritis).

Women who have a family member with fibromyalgia may be more likely to have fibromyalgia themselves.

How Is Fibromyalgia Treated?
Fibromyalgia can be hard to treat. It’s important to find a doctor who is familiar with the disorder and its treatment. Many family physicians, general internists, or rheumatologists can treat fibromyalgia. Rheumatologists are doctors who specialize in arthritis and other conditions that affect the joints or soft tissues.

Fibromyalgia treatment often requires a team approach. The team may include your doctor, a physical therapist, and possibly other health care providers. A pain or rheumatology clinic can be a good place to get treatment.

What Can I Do to Try to Feel Better?
There are many things you can do to feel better, including:

  • Taking medicines as prescribed
  • Getting enough sleep
  • Exercising
  • Eating well
  • Making work changes if necessary.

What Research Is Being Done on Fibromyalgia?
The NIAMS sponsors research to help understand fibromyalgia and find better ways to diagnose, treat, and prevent it. Researchers are studying:

  • Why people with fibromyalgia have increased sensitivity to pain.
  • Medicines and behavioral treatments.
  • Whether there is a gene or genes that make a person more likely to have fibromyalgia.
  • The use of imaging methods, such as magnetic resonate imaging (MRI), to better understand fibromyalgia.
  • Inflammation in the body and its relationship to fibromyalgia.
  • Nondrug therapies to help reduce pain.
  • Methods to improve sleep in people with fibromyalgia.

Everything You Need to Know About Your Wheelchair Vans A/C

Everything You Need to Know About Your Wheelchair Vans A:C


How does the A/C system work?

We all want the ultimate chill blasting out of our vents; especially when it comes to surviving summers heat. When the A/C system kicks in on those hot, sweaty days, that’s something we all cherish. But, believe it or not, there’s no ice machine inside your van (but at one time ice was used to cool people’s rides down). In fact, the cold air generated by your A/C system is actually hot air with hot gases removed during a multi-step process.

It really is thermodynamics but we’re not get into that. The cliff’s note version is simply about changes in pressure causing changes in temperature. Turn the A/C on and the compressor compresses the system’s refrigerant (Freon) raising its temperature. It loses heat as it flows through the condenser (that second radiator looking thing in front of the radiator). It passes through the receiver/dryer where contaminants and moisture are removed, and then on to the expansion valve/accumulator where the refrigerant is slowed down further, causing it to lose pressure and temperature before it gets to the evaporator. The evaporator is like a mini radiator (not to be confused with the heater core — they are two separate things) inside the dash of your vehicle that gets cold as it further lowers the refrigerants temperature and, additionally, removes moisture from the air. The ventilation system’s blower motor blows air over the cold evaporator and pushes cool air into the passenger compartment. Complicated, but refreshing!

Now that you know what being cool is all about, if you have problems being cool, call us to set up an appointment for an A/C Performance Check.

How often should my A/C be inspected?
You tell us. How’s the air feeling in your wheelchair van? Are you refreshed and cooled with full air flow when your A/C is pumping? Well, if you answered “Yes, I am  cooler than bein’ cool (ICE COLD!),” you can cross A/C inspection off your list.

For all the “No” respondents: do you fall into the “my A/C is not cold enough” or the “it’s taking way too long to cool down,” side of the spectrum? Stop sweating and stop in for an A/C Performance Check, we’ll have you back rolling down those hot summer streets cooler than ever. So chill, your A/C is only an inspection away from cooler days.

How often do I need my A/C system “recharged”?
Only when the cool breeze no longer feels as chilly as you remember. Simple enough. Now, it is true that a well maintained A/C system can go its entire life without needing a recharge. But, that’s if you’re extremely lucky.

If you start noticing your A/C isn’t reaching those refreshingly cool temperatures, have your system inspected. In this situation, most vans Honda, Toyota, Dodge and Ford will be low on Freon. And since the A/C is a sealed system, low Freon is a big sign that something is not right. It could be a small leak that needs attention or possibly part of the A/C is failing – bring it in and we’ll perform an A/C Performance Check and get to the root of the problem. We’ll get you back out there cruising with a nice, cool breeze again.

What is refrigerant?
Typically referred to by the DuPont trade name Freon, the most common Freons are R-12, R-134A, and soon, HFO-1234yf. Freon is pretty similar to motor oil and radiator coolant in that it is a working fluid designed for a specific system; In this case, your car’s A/C system.

Refrigerant is a specially formulated mixture that’s sole purpose for transforming hot air into cold air. It does this by absorbing and releasing heat, ultimately leaving cool air behind.

What exactly is Freon?
Sounds like an automotive A/C history lesson is in order. Well, welcome, pull up a seat and put on your thinking cap.

Freon, better known as R-12, was the primary chlorofluorocarbon (CFC) used in car A/C systems up until it was banned in the mid 1990s after the EPA discovered that it was depleting our planet’s ozone Layer. Talk about toxic.

The auto industry has since switched to the CFC free R-134a. Since the elimination of CFCs from the auto industry —and all industries for that matter—the ozone layer has regained its structure, and the ozone holes caused by CFCs are expected to fully close by about 2050 according to the EPA.

What is the Montreal Protocol? (R-12)
No, this isn’t a treaty you learned about in history class. The Montreal Protocol is actually the official title of the banishment of R-12 (Freon) and other CFC (Chlorofluorocarbons) emitting products from further use anywhere on the planet. And for good reason—CFCs were discovered to be tearing big holes in our ozone layer.

The Montreal Protocol was first signed into law in 1987. If the entire industrial world follows the environmental standards meant to eliminate the use of ozone depleting gases (in place in the United States since 1996), the ozone is said to fully recover by 2050.

The Montreal Protocol is why we now use R-134a instead of the ozone depleting R-12. Starting in 2013, certain U.S. vehicle models will begin transitioning to an even more efficient and safer cooling agent called HFO-1234yf. Talk about a mouthful. HFO-1234yf is said to have almost no environmental impact what-so-ever. And that’s something we can all look forward to.

What’s the difference between R-134a and R-12?
You can say the difference is so big that it has spared the fate of the entire planet. Not to get all deep on your psyche and all, but after it was discovered that R-12 and a whole multitude of products containing Chlorofluorocarbons (CFC) were destroying the ozone layer, environmental scientists immediately started work on an alternative cooling agents free of ozone depleting CFCs. That formula is R-134a: the standard and only refrigerant permitted in automotive A/C systems today.

R-134a, though safer, is not perfect:
Beginning in 2013, R-134a is being replaced by a new formula, HFO-1234yf, available on select U.S. car models. HFO-1234yf is the cleanest, safest refrigerant yet. And what’s even more important is that it has been studied and certified as leaving no impact on the environment what-so-ever. Talk about a great advancement in A/C technology that will help protect our planet for all those driven to cruise the open roads for many years to come.

But why replace R-134a?
Well, although R-134a was designed with the ozone layer in mind, it’s still made with chemicals that can harm the environment if they leak out of your A/C system or are disposed of improperly. With that known fact, international environmental scientists knew an even safer A/C refrigerant was out there waiting to be formulated.

HFO-1234yf is set to become the refrigerant standard:

  • It has been tested and found to leave behind virtually no impact on the environment.
  • If your A/C system should leak, there’s no longer an environmental freak out.

It’s all about the future generations of drivers. Our goal as automotive professionals is to provide the best care for your mobility vehicle while preserving the natural environment of the road your vehicle cruises down for many years to come.

How many parts make up a wheelchair van A/C system?
Your A/C system consists of five major parts, all working together to cool you off and all your passengers.

Most A/C systems are built with:

  • Compressor
  • Condenser
  • Receiver dryer or Accumulator
  • Orifice tube or Expansion valve
  • Evaporator

Your A/C system also consists of hoses and refrigerant charging ports, but the significant work occurs in the five parts listed above. You can learn more about each part that makes up your A/C system starting with the next question. Cool.

What is the A/C compressor?
The compressor is the core, primary part of every A/C system. If you want to stay cool, a working compressor is essential. We’ve seen people try to create cold air with out one. Trust us, it doesn’t work.

The compressor:

  • Pressurizes the refrigerant that cools the air in your mobility van.
  • Senses temperature changes: Compressors monitor and control temperature output with an electrically operated clutch. This clutch turns on and off whenever you change the temperature, choose a different airflow setting or just when plain old air from outside drops or rises in temperature.
  • Powered by the serpentine belt: That winding belt under your hood is responsible for powering many crucial components, including your A/C compressor.

Signs of a worn compressor: Oil or Freon leaks, noise, and erratic or no operation are indications that a compressor may need to be replaced. We can inspect your car for leaks using special refrigerant detecting dyes and devices. You may not be able to see a leak, but our equipment, sometimes referred to as a “sniffer,” can detect—or sniff-out—a chemical leak even if no liquid is visible. Yea, you can say we’re pretty advanced over here.

What is an A/C condenser?
Consider it the master of turning hot refrigerant gasses into liquid. The condenser is mounted at the front of most vehicles, usually in front of the radiator. Air passes through the condenser, turning the hot refrigerant gas into a condensed, cooler refrigerant liquid.

An A/C condenser is:

  • Found In front of the radiator and often referred to as a mini-radiator
  • The master refrigerant cooler. And still champion. The Condenser radiates the hot refrigerant gasses that have entered from the compressor, reducing its temperature and pressure, turning it into a liquid that moves on to the A/C Dryer.

Signs of a worn condenser:

  • Leaks
  • Clogged, corroded or damaged fins or tubes
  • Poor air conditioning performance

What’s a receiver/dryer?
The receiver or dryer is found on vehicles with a thermal expansion valve. It’s the safety net responsible for trapping all harmful debris, moisture and liquids from reaching the compressor and other vital A/C parts.

The roles of the receiver/dryer:

  1. Separates gas from liquid. If liquid isn’t contained in the dryer, it can enter and destroy your compressor (Compressors aren’t designed to handle liquids. Only gas).
  2. Removes moisture. To trap moisture, a desiccant is used. Desiccant is similar to those moisture killing packets you find in the packaging of new electronic devices.
  3. Filters out contaminants. No one wants a contaminated A/C system. Contaminants can lead to accelerated parts wear and damaging corrosion.

Quick fact: If there’s any moisture present in your compressor, it can mix with the Refrigerant and create very damaging corrosive acids.

Symptoms of a worn receiver/dryer:

  • Poor air conditioner performance
  • Moisture on glass and/or inability of defroster to remove moisture from glass and windows

The receiver/dryer must be replaced in the following situations:

  • Anytime the A/C system is opened for repair, the reciever/dryer will need to be replaced.
  • Whenever a technician has determined moisture or debris has permanently damaged your receiver/dryer performance.

What is an accumulator?
An accumulator is similar to a receiver-dryer but only found on vehicles with an orifice tube. If you have an accumulator, that means you don’t have a thermal expansion valve.

The accumulator:

  • Monitors and controls the amount of refrigerant that enters the evaporator.
  • Stores excess Refrigerant so that it cannot enter and damage the compressor.
  • Filters debris and removes moisture from the A/C System.

When to replace the accumulator:

  • Anytime the A/C system is opened for repair, the accumulator will need to be replaced.
  • Whenever a technician has determined moisture or debris has permanently damaged your accumulator’s performance.

What is a thermal expansion valve/orifice tube?
The orifice tube or thermal expansion valve is located between the condenser and the evaporator. Its job is to constantly monitor the pressure and temperature of you’re A/C system in order to determine the exact amount of refrigerant that can safely enter your evaporator. An orifice tube may also contain a fine mesh screen to block contaminants from the rest of the system.

Quick fact: If too much or too little refrigerant enters the evaporator, you could have a big problem on your hands. The proper function of the thermal expansion valve or orifice tube is crucial for successful A/C system operation.

Signs of a worn orifice tube or thermal expansion valve:

  • Poor A/C system performance
  • When a technician has determined it has become dirty or clogged

What is an evaporator?
The evaporator is responsible for cooling air and removing moisture. If cold, refreshing air is hitting your face, your evaporator is working like a champ.

The evaporator:

  • Located right behind your dash. The evaporator is the last and most important stop before cold air can hit your face.
  • Cools air with refrigerant. Low pressure Refrigerant traveling through the evaporator absorbs heat from the passenger compartment dropping the temperature of the evaporator. Air blown over the cool surface of the evaporator then comes out the vents providing the chill you expect.
  • Commences cold air flow. The best and final stage. Cold air should now be blowing out your vents thanks to the hard work of the evaporator.

Symptoms of a worn evaporator:

  • Poor A/C system performance

What is a compressor clutch?
Before the compressor turns on, a special electro-magnetic clutch, conveniently called the “compressor clutch,” is necessary to engage and disengage the compressor cycle. The compressor clutch tells the compressor when to turn on or off so that the Freon (refrigerant) is correctly pressurized for use by the condenser which is then delivered to the evaporator where the chill begins.

Experiencing A/C problems with your Braun, VMI or Eldorado wheelchair van? call to schedule a A/C inspection today.

What is the clutch cycling switch?
The clutch cycling switch senses and controls the temperature in the evaporator core to prevent it from freezing. Although most cars can blow air at temperatures as low as 60 degrees, the temperatures inside the evaporator core can get cold enough to completely freeze the entire core. Not good! The clutch cycle’s job is to make sure the evaporator temperature doesn’t reach the point of glacier temperatures.

Symptoms of a failing clutch cycling switch:

  • Evaporator freezing up
  • Evaporator does not get cold enough

What is a refrigerant charge port?
This is where the magic happens. The refrigerant charge port is the connection point where new refrigerant can enter the system during an A/C system recharge. Your port is usually located on the bigger A/C hose near or on the accumulator.

Caution: Only properly equipped and qualified persons should perform A/C recharging services.

Huntington’s Disease

Huntington’s disease (HD) is an inherited brain disorder that results in the progressive loss of both mental faculties and physical control. Symptoms usually appear between the ages of 30 to 50, and worsen over a 10 to 25 year period. Ultimately, the weakened individual succumbs to pneumonia, heart failure or other complications.

Everyone has the HD gene but it is those individuals that inherit the expansion of the gene who will develop HD and perhaps pass it onto each of their children.

Presently, there is no cure. Although medications can relieve some symptoms, research has yet to find a means of slowing the deadly progression of HD.

Current estimates are that 1 in every 10,000 Americans has HD and more than 250,000 others are at-risk of having inherited it from a parent. Once thought a rare disease, HD is now considered one of the more common hereditary diseases.

Every person who inherits the expanded HD gene will eventually develop the disease.
Over time, HD affects the individual’s ability to reason, walk and speak

Symptoms Include:

  • Personality changes, mood swings and depression
  • Forgetfulness and impaired judgment
  • Unsteady gait and involuntary movements
  • Slurred speech and difficulty in swallowing

The Scope of HD
Approximately 30,000 Americans have HD, but the devastating effects of the disease touch many more. Within a family, multiple generations may have inherited the disease. Those at-risk may experience tremendous stress from the uncertainty and sense of responsibility. In the community, lack of knowledge about HD may keep friends and neighbors from offering social and emotional support to the family, fostering unnecessary isolation.

The Huntington’s Disease Society of America (HDSA) has a nationwide network that provides support and referrals for individuals with HD and their families.

Genetic Testing for HD
Individuals can be tested for the gene that causes HD. The test may be used to confirm a diagnosis of HD, but may also be used as a predictive test before symptoms arise. Some individuals at-risk for HD feel that it is important to know whether they carry the gene. Others ultimately choose not to be tested. While the actual procedure is simple, the decision to have the test is not. HDSA recommends that persons wishing to undergo presymptomatic testing for HD do so at one of our HDSA Centers of Excellence, or at a testing center with specific training in working with HD. A list of these testing centers is available from HDSA

HD affects both sexes and all races and ethnic groups around the world.
The Decision to test is highly personal and should never be rushed or forced.

Who is At-Risk?
Every child of a parent with HD has a  50/50 chance of inheriting the expanded gene that causes the disease. If the child has not inherited this expanded gene, he or she will never develop the disease and cannot pass it on to their children.

Genetic Information Nondiscrimination Act of 2008 (GINA)
The Genetic Information Nondiscrimination Act (GINA) protects people from discrimination by health insurers and employers on the basis of their DNA information. This federal law also enables individuals to take part in research studies without fear that their DNA information might be used against them by health insurers or in the workplace.

However, GINA protections do not extend to long term care, disability or life insurance policies. Anyone contemplating testing should first consider adding one or more of these types of policies before starting the testing process.

Advocacy
HDSA advocacy works to advance legislation and policy to improve the lives of HD families by raising awareness about HD in the U.S. Congress, by promoting legislation, policy and regulations that would help individuals in the HD community, by educating Federal agencies about HD, and by partnering and collaborating with national organizations that have common goals. Learn more at www.hdsa.org/advocacy.

Join us in the fight against HD
YOU can help HDSA in our efforts to end HD and provide resources for those who must face this disease daily. Both funds and volunteers are needed. Contact the HDSA National Office to find out how YOU can help.

HD does not skip generations; if one does not inherit the expanded gene, one cannot pass it on

An End To HD?
In 1993, researchers identified the gene that causes HD. Since then, research has moved quickly towards developing treatments and, ultimately, a cure. HDSA supports the goals of clinical and basic research at leading research facilities globally.

Clinical and observational trials are an important way you can help to sustain the momentum of HD research and move potential new therapies through the approval process. Visit the Research section of the HDSA website for more information and to find a trial in your area. There are opportunities for all HD family members – gene positive, at-risk, gene negative, and caregivers – to participate.

About HDSA
The Huntington’s Disease Society of America (HDSA) is the largest 501(C)(3) non-profit volunteer organization dedicated to improving the lives of everyone affected by Huntington’s disease. Founded in 1968 by Marjorie Guthrie, wife of folk legend Woody Guthrie who lost his battle with HD, the Society works tirelessly to provide family services, education, advocacy and research to provide help for today, hope for tomorrow to the more than 30,000 people diagnosed with HD and the 250,000 at-risk in the United States.

Where to find help
You are not alone in facing HD. HDSA has developed a nationwide network that includes Chapters and Affiliates, HDSA Centers of Excellence, Support Groups, and Social Workers that are ready to assist you with referrals and resources in your area. To learn more, please visit www.hdsa.org or call 888-HDSA-506.

Research worldwide is working to unlock the mystery of HD and find a cure