Sunday September 27, 2015
9:30am – 6:00pm
Hilltop AA Club
For more information please visit the Facebook Page
Sunday September 27, 2015
9:30am – 6:00pm
Hilltop AA Club
For more information please visit the Facebook Page
When?
Saturday March 28, 2015
At 7:00pm
Where?
East Bridgewater Commercial Club
East Bridgewater, MA 02333
Why?
To Help raise awareness about Fibrodysplasia Ossificans Progressiva (FOP)
All Proceeds will benefit the Morgan Fund in Honor of Morgan Lawler.
More Information
This event is for adults.
Tickets are $20.00 per person.
There will be raffle items available.
Donations can be made out to:
The Morgan Fund
P.O. Box 96
East Bridgewater, Ma 02333
Website
Please feel free to invite your friends.
Facebook Page
6th Annual
Morgan’s Ride
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What?
Motorcycle Ride – Live Entertainment *Better than Nuthin’* – and More
*Bike not required to participate, EVERYONE IS WELCOME!*
When?
Sunday, September 21, 2014
Registration at 9:30am — Ride leaves at noon
Where?
The Hilltop Athletic Club
65 Pottle Street
Kingston, MA
Why?
All Proceeds to benefit the Morgan Fund in Honor of Morgan Lawler.
Morgan Suffers from FOP (Fibrodysplasia Ossificans Progressiva)
How Much?
$20 Donation per person
For Donations or raffle items please contact Rick & Samantha Wood
MorgansRide@verizon.net
Website
Facebook Page
What is Fibrodysplasia Ossificans Progressiva (FOP)?
One of the rarest, most disabling genetic conditions known to medicine, it causes bone to form in muscles, tendons, ligaments and other connective tissues. Bridges of extra bone develop across joints, progressively restricting movement and forming a second skeleton that imprisons the body in bone. There are no other known examples in medicine of one normal organ system turning into another.
An example of the typical progression of FOP:
Spontaneous flare-ups of the disease arise in defined temporal and spatial patterns, resulting in ribbons and sheets of bone that fuse the joints of the axial and appendicular skeleton, entombing a patient in a skeleton of heterotopic bone. These photos show an individual with FOP through his lifetime.
How would understanding the cause of bone formation in FOP help others?
The information obtained from studying this disease will have far reaching implications for the treatment of common disorders such as fractures, osteoporosis, hip replacement surgery, and other forms of heterotopic ossification that occur in trauma and burn victims.
Demographics of FOP:
Clinical Characteristics of FOP:
Finding a Cure and Treatment for FOP: