Tag Archives: communication

Tips For Including People With Disabilities At A Party

With the holiday season upon us, it’s easy to hold a party where all guests — with and without disabilities — feel welcomed, respected and have fun. All it takes is some planning.

 Don’t be afraid to include guests with disabilities
People with disabilities have their disabilities 24/7, so they know how to create work-arounds so that they feel comfortable. If you know someone has a disability, use a simple strategy — ask the person what they need to be fully included. All too often people with disabilities are not invited to events, or don’t go because they feel embarrassed to “put someone out” by asking for a simple thing that will help them attend. By telling them that their presence is valued, and asking what they need, you will build a new level of trust and affection. For example, one of the biggest things that aging loved ones need is a ride. So help them find a carpool or send an accessible taxi or ride to pick them up and return them home.

RSVP
Not all disabilities are visible, so you may not know that someone you want to include in your event has some special needs. By including a line about accommodations in the invitation’s RSVP, you are already letting guests know that everyone is welcome. If it’s a party for children, parents can tell you, right off the bat, what their child’s needs might be to attend the party. They will be happy you asked! “We want everyone to have fun — please let us know if you have dietary restrictions or require other special accommodations to attend! We will do our best to meet everyones needs.” Note that you aren’t promising to meet all needs — if you can’t find a sign language interpreter at the last minute or there is another issue, for example, you will be able to let your guest know in advance. Indeed, they may be able to help you find a solution!

Physical Access
Most public places are accessible. However, because religious institutions are exempted from the Americans with Disabilities Act (ADA), many of them are not fully accessible. Thus, if your event is at a venue that is not physically accessible to all, move it to a place that is. That can mean a different room in a place of worship, or to a completely different place. Venues should have a ground level entrance or ramp, an elevator if it’s upstairs, and accessible bathrooms. Most public places (hotels, restaurants, bowling, video games, pools, bounce houses, etc.) are usually equipped for people with disabilities. Just check with the venue ahead of time. If you have someone coming who uses a wheelchair, you should also put the menorah on a table that is low enough for them to also be able to light candles.

Special Diets
Anyone can have allergies, celiac disease or lactose intolerance, but you won’t know unless you ask on the invitation RSVP. Making sure there is an option for cake, snacks, treats and other food for these guests can be as simple as picking up a gluten free cupcake to serve with the cake. It is thoughtful to have refreshments that everyone can enjoy.

Addressing attitude
Kids and adults can be daunted when encountering someone who is different from them. If it’s a children’s event you can talk to the group at the start of the party about kindness and respect for each other and each others differences. A party is a great opportunity for kids to learn about one another.

Involving parents
Parties can be exhausting for the hosts. Asking a parent or two to volunteer to help at the party, particularly if it’s a big group, can lighten the load for the hosts. Parents may feel more comfortable, especially if their child has social anxiety issues, if they are invited to stay or help as an option.

Sensory overload awareness
Parties can cause sensory overload for any child or adult. But for a person with autism or a sensory processing disorder, a party can be really overwhelming. Offer opportunities for guests to take a break, perhaps in a quiet room away from the crowd. Some venues may have options for turning down music or minimizing stimulation — and that is useful anywhere there are a lot of kids! Latex allergies (balloons) and chemical sensitivities (use of highly scented cleaners or staff wearing perfumes) are real issues. Solutions: Use alternative mylar balloons. Ask people to not wear strong scents, and choose unscented cleaning products.

Communication
If a guest attending the party is non-verbal or communicates in other ways such as American Sign Language or a communication board, talk about it with the guests. Installing free Dragon software onto an Ipad in advance can enable you to speak with someone who is deaf as it instantly transcribes what you are saying. Having an interpreter can be worth the cost, as all the people can communicate and maybe learn a little sign language! Remember to speak directly to a child or adult whether s/he is verbal or not.

Reading, Cognitive Access and Vision Issues
Children and adults with cognitive, learning disabilities or vision impairments might not be able to read the menu, instructions for a scavenger hunt or a game score sheet. Pictures and verbal instructions are useful, as well as pairing children with those who can help. It’s always great to have an extra pair of reading glasses around if you are inviting seniors. But you can always tell someone who can’t see or read what they will need or what to know.

Enjoy the party!
Don’t let inclusion stress you out. If you are reading this list and considering these tips, you’re already doing more than most! Stay positive, smile and throw that PARTY!

March Is Developmental Disabilities Awareness Month

President Ronald Reagan declared March to be Developmental Disabilities Awareness Month in 1987, urging “all Americans to join me in according to our fellow citizens with such disabilities both encouragement and the opportunities they need to lead productive lives and to achieve their full potential.”

What is a Developmental Disability?

Definition of Developmental Disability
Developmental Disability means a disability that is manifested before the person reaches twenty-two (22) years of age, which constitutes a substantial disability to the affected individual, and is attributable to mental retardation or related conditions which include cerebral palsy, epilepsy, autism or other neurological conditions when such conditions result in impairment of general intellectual functioning or adaptive behavior similar to that of a person with mental retardation. Unless otherwise specifically stated, the federal definition of “Developmental Disability” found in 42 U.S.C. 6000, et seq., shall not apply.

  • A. Impairment of general intellectual functioning means that the person has been determined to have an intellectual quotient equivalent which is two or more standard deviations below the mean (70 or less assuming a scale with a mean of 100 and a standard deviation of 15), as measured by an instrument which is standardized, appropriate to the nature of the person’s disability, and administered by a qualified professional. The standard error of measurement of the instrument should be considered when determining the intellectual quotient equivalent. When an individual’s general intellectual functioning cannot be measured by a standardized instrument, then the assessment of a qualified professional shall be used.
  • B. “Adaptive behavior similar to that of a person with mental retardation” means that the person has overall adaptive behavior which is two or more standard deviations below the mean in two or more skill areas (communication, self-care, home living, social skills, community use, self-direction, health and safety, functional academics, leisure, and work), as measured by an instrument which is standardized, appropriate to the person’s living environment, and administered and clinically determined by a qualified professional. These adaptive behavior limitations are a direct result of, or are significantly influenced by, the person’s substantial intellectual deficits and may not be attributable to only a physical or sensory impairment or mental illness.

“Substantial intellectual deficits” means an intellectual quotient that is between 71 and 75 assuming a scale with a mean of 100 and a standard deviation of 15, as measured by an instrument which is standardized, appropriate to the nature of the person’s disability, and administered by a qualified professional. The standard error of measurement of the instrument should be considered when determining the intellectual quotient equivalent.

 

Definition of Developmental Delay
A developmental delay is the slowed or impaired development of a child who is under 5 years old and who is at risk of having a developmental disability because of the presence of one or more of the following:

  • Congenital syndromes and conditions associated with delay in development,
  • Metabolic disorders,
  • Prenatal and perinatal infections and significant medical problems,
  • Low birth weight infants weighing less than 1200 grams,
  • Postnatal acquired problems known to result in significant developmental delays, OR:
  • A child less than 5 years old who is delayed in development by 1.5 standard deviations or more in one or more of the following areas; communication, self-help, social-emotional, motor skills, sensory development or cognition, OR
  • A child less than 3 years of age who lives with one or both parents who have a developmental disability.

Thousands Offered For Disability Innovations

With $25,000 in prize money on the line, inventors are being challenged to tackle real-world barriers facing people with disabilities.

United Cerebral Palsy is offering up cash to anyone who can turn one of three ideas they’ve pinpointed into reality. The reward is being offered for creating a solar-powered wheelchair, a fold-up motorized wheelchair that can fit inside a typical car or a documentary focusing on the successes of people living with cerebral palsy in the 21st century.

The ideas were picked from nearly 500 that were submitted last year to the organization’s “Change My World In 1 Minute” contest. The challenge called for ideas that would “improve mobility, independence, accessibility, communication or social connections” for those with cerebral palsy.

“We’re challenging the world to bring these three innovative ideas to life and to help people living with disabilities become more independent, increase accessibility and raise awareness,” said Stephen Bennett, president and CEO of UCP. “We invite everyone, including universities, engineers, companies, inventors, hackers and makers to bring their best thinking to the contest. This is a chance to use the best of humanity’s gifts to change the lives of others.”

Entries to the contest are due March 31 and the winners — who will share in the $25,000 prize money — are expected to be announced ahead of World Cerebral Palsy Day on Sept. 2.

Cerebral Palsy Alliance

Cerebral Palsy Alliance
Cerebral Palsy Alliance logo.svg
Type Non-Profit
Industry Nonprofit organization
Founded 1945
Founder(s) Audrie McLeod, CBE, Neil McLeod, OBE
Headquarters 187 Allambie Road
Allambie Heights, NSW 2100
Website cerebralpalsy.org.au

The Cerebral Palsy Alliance (formerly The Spastic Centre) is a not-for-profit organization which provides services to adults and children withcerebral palsy from over 70 sites across New South Wales, Australia.

Contents

History[edit]

Cerebral Palsy Alliance was founded on 30 January 1945 by a group of parents of children with cerebral palsy under the leadership of Audrie and Neil McLeod. It was the first organisation of its type in the world for people with cerebral palsy.[1]

Services[edit]

Cerebral Palsy Alliance services include:

  • Technology services
  • Equipment services
  • Mobility programs
  • Employment services
  • Day programs for adults
  • Accommodation support
  • Respite care
  • Therapy and education services
  • Aquatic programs
  • Information
  • Recreation

Cerebral palsy register[edit]

An Australian CP Register has been established to guide future research in prevention, intervention and service provision.

Fundraising[edit]

Miss Australia[edit]

Miss Australia Quest/Awards was run by The Spastic Centres of Australia for 45 years. Over its duration entrants, their families, committees, sponsors and the general public of Australia raised in excess of A$87 million. [2]

References[edit]

  1. ^ “Our History | Cerebral Palsy Alliance”. Cerebral Palsy Alliance. Retrieved May 17, 2013.
  2. ^ About Us – Miss Australia, Cerebral Palsy Alliance website.

External links[edit]