Tag Archives: autism awareness

Autism Awareness Month

Autism spectrum disorders (ASDs) are a group of developmental disabilities that can cause significant social, communication and behavioral challenges.

ASDs are “spectrum disorders” which means ASDs affect each person in different ways, and can range from very mild to severe. People with ASDs share some similar symptoms, such as problems with social interaction. But there are differences in when the symptoms start, how severe they are, and the exact nature of the symptoms.


Types of ASDs
There are three different types of ASDs:

  • Autistic Disorder (also called “classic” autism)
    This is what most people think of when hearing the word “autism.” People with autistic disorder usually have significant language delays, social and communication challenges, and unusual behaviors and interests. Many people with autistic disorder also have intellectual disability.
  • Asperger Syndrome
    People with Asperger syndrome usually have some milder symptoms of autistic disorder. They might have social challenges and unusual behaviors and interests. However, they typically do not have problems with language or intellectual disability.
  • Pervasive Developmental Disorder – Not Otherwise Specified (PDD-NOS; also called “atypical autism”)
    People who meet some of the criteria for autistic disorder or Asperger syndrome, but not all, may be diagnosed with PDD-NOS. People with PDD-NOS usually have fewer and milder symptoms than those with autistic disorder. The symptoms might cause only social and communication challenges.


Signs and Symptoms
ASDs begin before the age of 3 and last throughout a person’s life, although symptoms may improve over time. Some children with an ASD show hints of future problems within the first few months of life. In others, symptoms might not show up until 24 months or later. Some children with an ASD seem to develop normally until around 18 to 24 months of age and then they stop gaining new skills, or they lose the skills they once had.

A person with an ASD might:

  • Not respond to their name by 12 months
  • Not point at objects to show interest (point at an airplane flying over) by 14 months
  • Not play “pretend” games (pretend to “feed” a doll) by 18 months
  • Avoid eye contact and want to be alone
  • Have trouble understanding other people’s feelings or talking about their own feelings
  • Have delayed speech and language skills
  • Repeat words or phrases over and over (echolalia)
  • Give unrelated answers to questions
  • Get upset by minor changes
  • Have obsessive interests
  • Flap their hands, rock their body, or spin in circles
  • Have unusual reactions to the way things sound, smell, taste, look, or feel


Diagnosis
Diagnosing ASDs can be difficult since there is no medical test, like a blood test, to diagnose the disorders. Doctors look at the child’s behavior and development to make a diagnosis.

ASDs can sometimes be detected at 18 months or younger. By age 2, a diagnosis by an experienced professional can be considered very reliable. However, many children do not receive a final diagnosis until much older. This delay means that children with an ASD might not get the help they need.


Treatment
There is currently no cure for ASDs. However, research shows that early intervention treatment services can greatly improve a child’s development. Early intervention services help children from birth to 3 years old (36 months) learn important skills. Services can include therapy to help the child talk, walk, and interact with others. Therefore, it is important to talk to your child’s doctor as soon as possible if you think your child has an ASD or other developmental problem.

Even if your child has not been diagnosed with an ASD, he or she may be eligible for early intervention treatment services. The Individuals with Disabilities Education Act (IDEA) says that children under the age of 3 years (36 months) who are at risk of having developmental delays may be eligible for services. These services are provided through an early intervention system in your state. Through this system, you can ask for an evaluation.

In addition, treatment for particular symptoms, such as speech therapy for language delays, often does not need to wait for a formal ASD diagnosis.

Learn about types of treatments »


Causes and Risk Factors
We do not know all of the causes of ASDs. However, we have learned that there are likely many causes for multiple types of ASDs. There may be many different factors that make a child more likely to have an ASD, including environmental, biologic and genetic factors.

  • Most scientists agree that genes are one of the risk factors that can make a person more likely to develop an ASD.
  • Children who have a sibling or parent with an ASD are at a higher risk of also having an ASD.
  • ASDs tend to occur more often in people who have certain other medical conditions. About 10% of children with an ASD have an identifiable genetic disorder, such as Fragile X syndrome, tuberous sclerosis, Down syndrome and other chromosomal disorders.
  • Some harmful drugs taken during pregnancy have been linked with a higher risk of ASDs, for example, the prescription drugs thalidomide and valproic acid.
  • We know that the once common belief that poor parenting practices cause ASDs is not true.
  • There is some evidence that the critical period for developing ASDs occurs before birth. However, concerns about vaccines and infections have led researchers to consider risk factors before and after birth.

ASDs are an urgent public health concern. Just like the many families affected in some way by ASDs, CDC wants to find out what causes the disorder. Understanding the risk factors that make a person more likely to develop an ASD will help us learn more about the causes. We are currently working on one of the largest U.S. studies to date, called Study to Explore Early Development (SEED). SEED is looking at many possible risk factors for ASDs, including genetic, environmental, pregnancy, and behavioral factors.


Who is Affected
ASDs occur in all racial, ethnic, and socioeconomic groups, but are almost five times more common among boys than among girls. CDC estimates that about 1 in 88 children has been identified with an autism spectrum disorder (ASD).

More people than ever before are being diagnosed with an ASD. It is unclear exactly how much of this increase is due to a broader definition of ASDs and better efforts in diagnosis. However, a true increase in the number of people with an ASD cannot be ruled out. We believe the increase in ASD diagnosis is likely due to a combination of these factors.

Within the past decade, CDC’s Autism and Developmental Disabilities Monitoring (ADDM) Network has been estimating the number of people with an ASD in the U.S. We have learned a lot about how many children in the U.S. have an ASD. It will be important to use the same methods to track how the number of people with an ASD is changing over time in order to learn more about the disorders.


If You’re Concerned
If you think your child might have an ASD or you think there could be a problem with the way your child plays, learns, speaks, or acts,contact your child’s doctor, and share your concerns.

If you or the doctor is still concerned, ask the doctor for a referral to a specialist who can do a more in-depth evaluation of your child. Specialists who can do a more in-depth evaluation and make a diagnosis include:

  • Developmental Pediatricians (doctors who have special training in child development and children with special needs)
  • Child Neurologists (doctors who work on the brain, spine, and nerves)
  • Child Psychologists or Psychiatrists (doctors who know about the human mind)

At the same time, call your state’s public early childhood system to request a free evaluation to find out if your child qualifies for intervention services. This is sometimes called a Child Find evaluation. You do not need to wait for a doctor’s referral or a medical diagnosis to make this call.

Where to call for a free evaluation from the state depends on your child’s age:

  • If your child is not yet 3 years old, contact your local early intervention system.You can find the right contact information for your state by calling the National Dissemination Center for Children with Disabilities (NICHCY) at 1-800-695-0285.Or visit the NICHCY website. Once you find your state on this webpage, look for the heading “Programs for Infants and Toddlers with Disabilities: Ages Birth through 3″.
  • If your child is 3 years old or older, contact your local public school system.Even if your child is not yet old enough for kindergarten or enrolled in a public school, call your local elementary school or board of education and ask to speak with someone who can help you have your child evaluated.If you’re not sure who to contact, call the National Dissemination Center for Children with Disabilities at 1.800.695.0285 or visit the NICHCY website. Once you find your state on this webpage, look for the heading “Programs for Children with Disabilities: Ages 3 through 5″.

Research shows that early intervention services can greatly improve a child’s development. In order to make sure your child reaches his or her full potential, it is very important to get help for an ASD as soon as possible.

Autism Awareness Month

Autism Awareness Month

The importance of recognizing Autism throughout the month of April is to help better educate and raise awareness to the public. Autism is a complex mental condition and developmental disability, characterized by difficulties in the way a person communicates and interacts with other people. Autism can be present from birth or form during early childhood, typically within the first three years. Autism is a lifelong developmental disability with no single known cause.

People with autism are also known as having Autism Spectrum Disorder (ASD) both terms are often used interchangeably. People with ASD have a set of symptoms unique to themselves; no two people are the same. ASD affects people in different ways, and can range from very mild to severe. Although some symptoms are similar, such as challenges with social interaction, there are differences in when the symptoms start, how severe they are, and the exact nature of the symptoms.

If you are looking for a way to get involved, donate for just want to learn more information about Autism you can visit the websites of some great organizations such as Autism Speaks, Autism Society and the National Autism Association.

World Autism Awareness Day: Light It Up Blue

Light It Up Blue - World Autosm Awareness Day

Every April 2, Autism Speaks celebrates World Autism Awareness Day with a global autism awareness campaign called Light It Up Blue. It’s easy (and fun!) to be a part of it — you can do anything from wearing blue to lighting your whole office or school up blue.

Add your name to say you’ll be a part of it, and we’ll be in touch with resources and ideas to get your friends involved. Thanks for helping shine a light on autism.

World Autism Awareness Day - Light It Up Blue

What Is Autism?
Autism spectrum disorder (ASD) and autism are both general terms for a group of complex disorders of brain development. These disorders are characterized, in varying degrees, by difficulties in social interaction, verbal and nonverbal communication and repetitive behaviors. With the May 2013 publication of the DSM-5 diagnostic manual, all autism disorders were merged into one umbrella diagnosis of ASD. Previously, they were recognized as distinct subtypes, including autistic disorder, childhood disintegrative disorder, pervasive developmental disorder-not otherwise specified (PDD-NOS) and Asperger syndrome.

ASD can be associated with intellectual disability, difficulties in motor coordination and attention and physical health issues such as sleep and gastrointestinal disturbances. Some persons with ASD excel in visual skills, music, math and art.

Autism appears to have its roots in very early brain development. However, the most obvious signs of autism and symptoms of autism tend to emerge between 2 and 3 years of age. Autism Speaks continues to fund research on effective methods for earlier diagnosis, as early intervention with proven behavioral therapies can improve outcomes. Increasing autism awareness is a key aspect of this work and one in which our families and volunteers play an invaluable role.

Researchers Identify Possible Cause Of 1 In 4 Autism Cases

 

researchers identify possible cause of 1 in 4 autism cases

Nearly a quarter of could be due to antibodies found in the mother’s blood during pregnancy that interfere with fetal brain development, researchers say.

In a study published this week in the journal Translational Psychiatry, researchers report that certain antibodies found almost exclusively in women with children who have autism may be affecting brain development during pregnancy.

The problematic antibodies could account for as many as 23 percent of all cases of the developmental disorder, the study found.

“These findings are incredibly important because they establish a cause for a significant portion of autism cases, thereby opening up new lines of inquiry into possible biological treatments,” said Leonard Abbeduto, director of the University of California, Davis MIND Institute where the research was conducted.

Typically, maternal antibodies enter the placenta to help ward off bacteria and other viruses. But in some cases, instead of extending immunity to the child, these antibodies become what are known as autoantibodies and attack healthy tissue.

For the study, researchers looked at blood samples from 246 mothers of children with autism and 149 mothers of children without the developmental disorder. They found that nearly 1 in 4 moms with a child on the spectrum had certain combinations of antibodies that target fetal brain proteins. The antibodies were found in less than 1 percent of mothers in the control group.

The finding could lead to a diagnostic test that could be given to mothers if they have a young child suspected of having autism, researchers said, allowing children to enter early intervention.

Such a test might also be used to assess a woman’s chance of having a kid with autism prior to becoming pregnant, they indicated.

“It is important to note that women have no control over whether or not they develop these autoantibodies, much like any other autoimmune disorder,” said Judy Van de Water, a researcher at the MIND Institute who led the study. “And, like other autoimmune disorders, we do not know what the initial trigger is that leads to their production.”

In a separate study that was published in the same journal, researchers injected pregnant monkeys with the antibodies spotted in many mothers of kids with autism and found that the exposure negatively affected behavior and development in the offspring.

ACT Today autism grant program

Grant Program

ActTodayLogo

The ACT Today! board provides funding assistance to families on a quarterly basis.

Click here for more information and to access the ACT Today! and ACT Today! for Military Families Grant Application Form:

www.wizehive.com/apps/acttoday2013

 

Quarter Open Application Period Families Will Be Notified By:
1st Quarter January 1 – 31, 2013 March 15, 2013
2nd Quarter April 1 – 30, 2013 June 15, 2013
3rd Quarter July 1 – 31, 2013 September 30, 2013
4th Quarter October 1 – 31, 2013 December 15, 2013


About there Grant Program

Grants will be allocated based on annual fundraising activities. The Board of Directors will determine the number and amounts of each grant at the beginning of each term. Requests for endowments or multi-year grants will not be accepted. Each application is kept in there system for two consecutive grant cycles after which the applicant must re-apply.

Once they determine how much they can give each quarter, they review the following items when considering approval of a grant request:

  • Completion of grant application – The application must be completed in its entirety to be reviewed. Partially completed applications will be kept on file for one year and additional information may be submitted to make the application complete within that timeframe.
  • Amount of grant request – Typical grants awarded range between $100 – $5,000.
  • Household income – While we have not set an income level cap, incomes below $100,000 per year are reviewed first.
  • Type of treatment requested – Our mission is to fund effective treatments, assessments and needed life supports.
  • Numbers of family members with ASD diagnosis – Applications from families with multiple children with ASDs are reviewed first.

Should your grant be funded, you will be asked to complete two short questionnaires regarding your experiences with them as a result of the funding you received. They also encourage families to share photos and stories. Once approved for a grant, families have 12 months to use the funds. Applicant receiving a grant agrees to repay the grant if any services paid for with the grant are reimbursed by another funding source, such as, a school district or insurance company.


Grant Making Philosophy

ACT Today! grants are designed to provide access to individuals and families affected by Autism Spectrum Disorders. Grant payments will be made directly to pre-approved treatment providers, assessors or materials vendors.

To best maximize your chance of being funded, please be aware that they will not fund:

  • Transportation requests (cars, car repair, transportation passes, air travel)
  • Hyperbaric Oxygen Therapy
  • Personal Needs (rent, utilities, family vacations)

FAQs
Please click here to read there Frequently Asked Questions regarding the grant application and process.
ACT Today! SOS
ACT Today! SOS is a program dedicated to supporting the immediate and imperative needs of those impacted with autism. They recognize that some individuals diagnosed with autism who are in immediate personal danger or harm are unable to wait up to 12 weeks for a response to their request. The ACT Today! SOS Program is designed to provide immediate support for these families based upon need and the program funds available. Click here to learn more

ACT Today! is a national nonprofit 501(c)(3) organization whose mission is to raise awareness and provide treatment services and support to families to help their children with autism achieve their full potential.