Tag Archives: assistive equipment

Invisible DisAbilities

Invisible DisAbilities

In general, the term disAbility is often used to describe an ongoing physical challenge. This could be a bump in life that can be well managed or a mountain that creates serious changes and loss. Either way, this term should not be used to describe a person as weaker or lesser than anyone else. Every person has a purpose, special uniqueness and value, no matter what hurdles they may face.

In addition, just because a person has a disAbility, does not mean they are disAbled. Many living with these challenges are still fully active in their work, families, sports or hobbies. Some with disAbilities are able to work full or part time, but struggle to get through their day, with little or no energy for other things. Others are unable to maintain gainful or substantial employment due to their disAbility, have trouble with daily living activities and/or need assistance with their care.

According to the Americans with Disabilities Act of 1990 (ADA) an individual with a disAbility is a person who: Has a physical or mental impairment that substantially limits one or more major life activities; has a record of such an impairment; or is regarded as having such an impairment (Disability Discrimination).

Furthermore, “A person is considered to have a disability if he or she has difficulty performing certain functions (seeing, hearing, talking, walking, climbing stairs and lifting and carrying), or has difficulty performing activities of daily living, or has difficulty with certain social roles (doing school work for children, working at a job and around the house for adults)” (Disabilities Affect One-Fifth of All Americans).

Often people think the term, disAbility, only refers to people using a wheelchair or walker. On the contrary,  the 1994-1995 Survey of Income and Program Participation (SIPP) found that 26 million Americans (almost 1 in 10) were considered to have a severe disAbility, while only 1.8 million used a wheelchair and 5.2 million used a cane, crutches or walker (Americans with Disabilities 94-95). In other words, 74% of Americans who live with a severe disAbility do not use such devices. Therefore, a disAbility cannot be determined solely on whether or not a person uses assistive equipment.

The term invisible disAbilities refers to symptoms such as debilitating pain, fatigue, dizziness, cognitive dysfunctions, brain injuries, learning differences and mental health disorders, as well as hearing and vision impairments.  These are not always obvious to the onlooker, but can sometimes or always limit daily activities, range from mild challenges to severe limitations and vary from person to person.

Also, someone who has a visible impairment or uses an assistive device such as a wheelchair, walker or cane can also have invisible disAbilities. For example, whether or not a person utilizes an assistive device, if they are debilitated by such symptoms as described above, they live with invisible disAbilities.

Unfortunately, people often judge others by what they see and often conclude a person can or cannot do something by the way they look. This can be equally frustrating for those who may appear unable, but are perfectly capable, as well as those who appear able, but are not.

The bottom line is that everyone with a disAbility is different, with varying challenges and needs, as well as abilities and attributes.  Thus, we all should learn to listen with our ears, instead of judging with our eyes.

Enabled By Design

Enabled by Design is a social business run on a not-for-profit basis for the benefit of its community.

It’s all about people-powered products and services:
Enabled by Design is a social business and community of people who are passionate about design for all. They believe that a good design can support people to live as independently as possible, by helping to make day-to-day tasks a little bit easier and in turn more manageable.

Enabled by Design’s work focuses on doing the following:

  • They provide their community with a space to share and talk about independent living products and services that are already available on the market, and to look at how they could be improved.
  • They are interested in exploring how people can “hack” or modify things to make them more accessible and easier to use.
  • They are working to develop relationships with designers, so that their community can help to improve the designs of the future with the aim of mainstreaming accessibility.

Enabled by Design was inspired by co-founder Denise Stephens’ experiences following her diagnosis of multiple sclerosis (MS) in 2003. Having suffered a series of disabling relapses and hospital admissions, Denise was assessed by an occupational therapist (OT) and given a range of assistive equipment to help her to be as independent as possible. Although this equipment made a huge difference to her life, she became frustrated as her home started to look more and more like a hospital. But Denise had an idea…

In April 2008, Enabled by Design was chosen to take part in the first ever Social Innovation Camp. A weekend long competition, Social Innovation Camp brings together people with ideas of how to solve specific social issues, with web developers, designers and those with business expertise to develop online solutions to real world challenges. At the end of the weekend after a Dragons’ Den-style pitching competition, Enabled by Design was awarded first prize as the ‘project with most potential’.

Since then Enabled by Design has been chosen to be part of the independent living stream of the Innovation Exchange’s Next Practice Programme, as well as a Level 1 and Level 2 Better Net UnLtd (Foundation for Social Entrepreneurs) award winner.

Denise and her co-founder, Dominic Campbell (also founder of government consultancy and social innovation incubator FutureGov), continue to work hard to spread the word about Enabled by Design and its goals, building a diverse community of people with an active interest in accessibility and design that supports independent living.

Funding Your Wheelchair Van with a Grant


Mobility beyond the wheelchair is out there, but so often, it’s out of reach financially for individuals with disabilities who have spent thousands on medical care. There are several avenues that lead to funds for a wheelchair accessible vehicle or adaptive equipment for driving, like loans, government assistance, mobility rebates and grants. So what’s great about grants?

Grant money doesn’t need to be repaid, which makes it especially attractive. What’s more, grant opportunities are plentiful; relevant grant-making organizations and foundations will supply partial or complete funding on wheelchair accessible vans for sale or assistive equipment; and you can combine funds from several sources to purchase the freedom and independence an accessible vehicle provides. Obtaining a grant to fund an accessible vehicle requires patience, perseverance and a detailed application process. Though it sounds daunting, these tips will help you navigate the process:

  • Be Patient

Grant providers don’t work in your time frame. They process thousands of applications just like yours, so you may wait longer than you’d like for a response. Expressing your aggravation to the grant provider might be counterproductive. Lowering your expectations will also lower your level of frustration during your quest for grant money. If you’re prepared for progress to move slowly, you’ll be thrilled if it takes less time than you expect.

  • Be Prepared with Necessary Information

With the likelihood you’ll want to apply to several granting institutions, it simply makes sense to have your basic information gathered and quickly accessible, so you can begin filling out an application as soon as you’ve identified another potential grant opportunity. Though the requirements on grant applications vary, you’ll need personal information on all of them, such as your Social Security Number, driver’s license number (if you have one), marital status, financial information and personal background details. It’s all about expediting the application process on your end. Keep in mind that funding organizations have different policies and requirements, so you’ll need to be flexible.

  • Line up Medical Records and References

Granting institutions will want to see your medical records. Your physician can provide you with a copy. Some physicians prefer to send your records directly to the granting institution. Either way, be sure your physician understands why you need your medical records. While you’re at it, ask your physician to write a letter of recommendation. It’s not necessary, but a letter from your physician, written on letterhead stationery, can often be helpful when applying for a grant. Ask that the letter be addressed to a generic individual (“Dear Sir or Madam” or “To Whom It May Concern”), so you can include a copy with each application.

Now’s the time to get references to support your efforts – ask close friends, neighbors, colleagues, church members and anyone who you believe will provide convincing, compelling input about your character and disability. Funding organizations want their personal perspective about your accomplishments, your attitude and how you manage your disability on a daily basis. Your references can also comment on how grant money to buy a wheelchair accessible vehicle would improve your present lifestyle.

  • Make Your Case

Your mission is to help the funding organization understand your personal history, your challenges and the impact any hardships have had on your life. Be honest and persuasive in telling your story to the grant provider (including an articulate, straightforward narrative, 1-2 pages in length), describing your plans for the funding and its potential positive effect on your future. Focus on setting yourself apart from other applicants with an emotional, inspiring account. You’re in competition for a limited amount of money, so this is important.

  • Research and Identify Appropriate Granting Institutions

You now have the necessary documents and backing to begin applying for grants. Start your research with these handicap van grants, sorted by location, medical need, veterans, special needs children and others to find one or more grants for your specific situation. If you search the Internet, use “disability grant providers,” “disability grants” and other relevant keyword phrases to find foundations and organizations. If you’re a disabled veteran, check with the Veterans Administration. Remember, you can combine sources to amass as much money as possible for your wheelchair van or adaptive equipment.

Organizations that support specific conditions often provide grants to people living with that disorder. Examples include United Cerebral Palsy, the National Multiple Sclerosis Society and the Muscular Dystrophy Association (MDA).

When you’ve identified a potential granting organization, read their mission statement and get an application form. Craft a cover letter in which you align your needs with the organization’s goals to demonstrate how you can help achieve the provider’s objectives. This is essential information for the funding organization.

  • Contact the Grant Providers

If at all possible, speak or write to the person in charge when you begin the application process to fund your handicap van. Typically, assistance programs will assign a project officer or contact person to help you through the details. Always be polite and thank them for their time. Through this direct line of communication, you can have your questions and concerns addressed. Get a contact name, phone number and email address for every organization to obtain status updates on your application. Request information on their timeline for choosing a candidate for the funding opportunity.

  • Stay Organized and Aware

With multiple applications at different stages in the process, it’s essential to keep track of your documents and deadlines. You should be able to put your hands on documents and paperwork at any given moment. Devise a system to remind yourself of important dates and deadlines, and be sure everything is submitted on time. Stand out from other applicants by demonstrating your desire to earn their financial assistance – meet all deadlines and stay up-to-date on the status of your applications.

Keep copies of all of your applications (electronic or paper copies, or both), and save any confirmation numbers or application numbers you may receive in a safe, readily accessible place. You may be asked for them at some point.

It may take time and effort to get the funding you need for a wheelchair van or adaptive equipment, but it’s absolutely worth it to gain the freedom and independence that can change your life.